Experiences of supportive care when waiting for a lung re-transplantation
(2017) In SAGE Open 5. p.1-7- Abstract
OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.
METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.
RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories:... (More)
OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.
METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.
RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories: 'when life turns and death once again snorts down your neck', 'the importance of information', and 'perceptions of support'. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown.
CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care.
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- author
- Ivarsson, Bodil LU ; Ingemansson, Richard LU and Sjöberg, Trygve LU
- organization
- publishing date
- 2017
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Advanced lung disease, pulmonary re-transplantation, experiences in everyday life
- in
- SAGE Open
- volume
- 5
- pages
- 7 pages
- publisher
- SAGE Publications
- external identifiers
-
- pmid:28540044
- scopus:85057897143
- ISSN
- 2158-2440
- DOI
- 10.1177/2050312117697151
- language
- English
- LU publication?
- yes
- id
- 37972223-efbb-41ef-bbf5-ce1a92fa42e4
- date added to LUP
- 2017-06-14 19:08:05
- date last changed
- 2024-03-06 08:48:23
@article{37972223-efbb-41ef-bbf5-ce1a92fa42e4,
abstract = {{<p>OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.</p><p>METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.</p><p>RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories: 'when life turns and death once again snorts down your neck', 'the importance of information', and 'perceptions of support'. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown.</p><p>CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care.</p>}},
author = {{Ivarsson, Bodil and Ingemansson, Richard and Sjöberg, Trygve}},
issn = {{2158-2440}},
keywords = {{Advanced lung disease; pulmonary re-transplantation; experiences in everyday life}},
language = {{eng}},
pages = {{1--7}},
publisher = {{SAGE Publications}},
series = {{SAGE Open}},
title = {{Experiences of supportive care when waiting for a lung re-transplantation}},
url = {{http://dx.doi.org/10.1177/2050312117697151}},
doi = {{10.1177/2050312117697151}},
volume = {{5}},
year = {{2017}},
}