Befriending Everyday Life When Bringing Technology into the Private Sphere
(2017) In Qualitative Health Research 27(6). p.843-854- Abstract
We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress... (More)
We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress the importance of bringing the patients into the care process as chronic illness will be a part of their everyday life for a long time to come, hence challenging patient autonomy.
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- author
- Lindberg, Catharina LU ; Fagerström, Cecilia ; Willman, Ania and Sivberg, Bengt LU
- organization
- publishing date
- 2017-05-01
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- advanced home care, autonomy, decision making, ethics, Giorgi, interviews, phenomenology, qualitative, technology, medical
- in
- Qualitative Health Research
- volume
- 27
- issue
- 6
- pages
- 12 pages
- publisher
- SAGE Publications
- external identifiers
-
- pmid:26848081
- pmid:26848081
- scopus:85018243086
- wos:000400198000008
- ISSN
- 1049-7323
- DOI
- 10.1177/1049732315627428
- language
- English
- LU publication?
- yes
- id
- b7a95665-59b3-4eb0-aa6d-eabe60aaa78c (old id 8829232)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/26848081?dopt=Abstract
- date added to LUP
- 2016-04-01 13:39:01
- date last changed
- 2022-04-21 22:48:02
@article{b7a95665-59b3-4eb0-aa6d-eabe60aaa78c,
abstract = {{<p>We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress the importance of bringing the patients into the care process as chronic illness will be a part of their everyday life for a long time to come, hence challenging patient autonomy.</p>}},
author = {{Lindberg, Catharina and Fagerström, Cecilia and Willman, Ania and Sivberg, Bengt}},
issn = {{1049-7323}},
keywords = {{advanced home care; autonomy; decision making; ethics; Giorgi; interviews; phenomenology; qualitative; technology, medical}},
language = {{eng}},
month = {{05}},
number = {{6}},
pages = {{843--854}},
publisher = {{SAGE Publications}},
series = {{Qualitative Health Research}},
title = {{Befriending Everyday Life When Bringing Technology into the Private Sphere}},
url = {{http://dx.doi.org/10.1177/1049732315627428}},
doi = {{10.1177/1049732315627428}},
volume = {{27}},
year = {{2017}},
}