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How do carriers of hemophilia experience prenatal diagnosis (PND)? : Carriers' Immediate and later reactions to amniocentesis and fetal blood sampling

Tedgård, Ulf LU ; Ljung, R LU orcid ; McNeil, T LU ; LANDEGREN TEDGÅRD, EVA LU and Schẃartz, M (1989) In Acta Paediatrica Scandinavica 78(5). p.692-700
Abstract

A semistructured personal interview was performed with 29 carriers of hemophilia A or B, 1-5 years after a pregnancy in which prenatal diagnosis (PND) was performed by fetal blood sampling. Fetal blood sampling by fetoscopy was significantly more often reported by the women to the more trying than expected than was ultrasound-guided heart puncture. Of 29 women 13 was classified as having experienced the PND process (amniocentesis and fetal blood sampling) as distressing, having had mental or psychosomatic symptoms associated with it. All of the women who had abortion/miscarriage after PND reported a very high frequency of psychological sequelae during the 6 months that followed PND. Of 22 women who continued their pregnancy with a... (More)

A semistructured personal interview was performed with 29 carriers of hemophilia A or B, 1-5 years after a pregnancy in which prenatal diagnosis (PND) was performed by fetal blood sampling. Fetal blood sampling by fetoscopy was significantly more often reported by the women to the more trying than expected than was ultrasound-guided heart puncture. Of 29 women 13 was classified as having experienced the PND process (amniocentesis and fetal blood sampling) as distressing, having had mental or psychosomatic symptoms associated with it. All of the women who had abortion/miscarriage after PND reported a very high frequency of psychological sequelae during the 6 months that followed PND. Of 22 women who continued their pregnancy with a healthy fetus after PND 8 experienced the period until delivery as trying and felt that their emotional and somatic status influenced their daily life activities. This was particularly common among women who after fetoscopy received routine profylactic terbutalin treatment and had continuous sickleave until the 36th gestational week, 17/29 would consider going through PND in the future. Qualified psychological assistance must be offered both before and after PND.

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Please use this url to cite or link to this publication:
author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
keywords
Adult, Amniocentesis, Attitude to Health, Female, Fetal Blood, Hemophilia A, Hemophilia B, Heterozygote, Humans, Pregnancy, Prenatal Diagnosis, Journal Article, Research Support, Non-U.S. Gov't
in
Acta Paediatrica Scandinavica
volume
78
issue
5
pages
692 - 700
publisher
Wiley-Blackwell
external identifiers
  • pmid:2596275
  • scopus:0024444743
ISSN
0001-656X
DOI
10.1111/j.1651-2227.1989.tb11128.x
language
English
LU publication?
yes
id
95059405-2c04-430f-82e9-6d37413945c2
date added to LUP
2016-10-26 14:07:57
date last changed
2024-01-04 14:59:25
@article{95059405-2c04-430f-82e9-6d37413945c2,
  abstract     = {{<p>A semistructured personal interview was performed with 29 carriers of hemophilia A or B, 1-5 years after a pregnancy in which prenatal diagnosis (PND) was performed by fetal blood sampling. Fetal blood sampling by fetoscopy was significantly more often reported by the women to the more trying than expected than was ultrasound-guided heart puncture. Of 29 women 13 was classified as having experienced the PND process (amniocentesis and fetal blood sampling) as distressing, having had mental or psychosomatic symptoms associated with it. All of the women who had abortion/miscarriage after PND reported a very high frequency of psychological sequelae during the 6 months that followed PND. Of 22 women who continued their pregnancy with a healthy fetus after PND 8 experienced the period until delivery as trying and felt that their emotional and somatic status influenced their daily life activities. This was particularly common among women who after fetoscopy received routine profylactic terbutalin treatment and had continuous sickleave until the 36th gestational week, 17/29 would consider going through PND in the future. Qualified psychological assistance must be offered both before and after PND.</p>}},
  author       = {{Tedgård, Ulf and Ljung, R and McNeil, T and LANDEGREN TEDGÅRD, EVA and Schẃartz, M}},
  issn         = {{0001-656X}},
  keywords     = {{Adult; Amniocentesis; Attitude to Health; Female; Fetal Blood; Hemophilia A; Hemophilia B; Heterozygote; Humans; Pregnancy; Prenatal Diagnosis; Journal Article; Research Support, Non-U.S. Gov't}},
  language     = {{eng}},
  number       = {{5}},
  pages        = {{692--700}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Acta Paediatrica Scandinavica}},
  title        = {{How do carriers of hemophilia experience prenatal diagnosis (PND)? : Carriers' Immediate and later reactions to amniocentesis and fetal blood sampling}},
  url          = {{http://dx.doi.org/10.1111/j.1651-2227.1989.tb11128.x}},
  doi          = {{10.1111/j.1651-2227.1989.tb11128.x}},
  volume       = {{78}},
  year         = {{1989}},
}