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An observation study of the level at which parents participate in decisions during their child’s hospitalisation

Hallström, Inger LU ; Runeson, Ingrid and Gunnel, Elander (2002) In Nursing Ethics 9(2). p.202-214
Abstract
Abstract

When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were... (More)
Abstract

When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2, the situations were assessed according to a five-level scale concerning how the parents' wishes, desires or values had been respected. In step 3, each situation was scrutinized with respect to factors influencing the extent of the parents' participation. The results showed that parents have varying ability to be involved in decision making. Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Nursing Ethics
volume
9
issue
2
pages
202 - 214
publisher
SAGE Publications
ISSN
1477-0989
language
English
LU publication?
yes
id
fee04508-2aad-44b5-bf2d-e6d8a49c99a8 (old id 1039642)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed?term=An%20observation%20study%20of%20the%20level%20at%20which%20parents%20participate%20in%20decisions%20during%20their%20child%E2%80%99s%20hospitalisation
date added to LUP
2012-12-28 12:58:09
date last changed
2016-04-16 12:36:25
@misc{fee04508-2aad-44b5-bf2d-e6d8a49c99a8,
  abstract     = {Abstract<br/><br>
When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2, the situations were assessed according to a five-level scale concerning how the parents' wishes, desires or values had been respected. In step 3, each situation was scrutinized with respect to factors influencing the extent of the parents' participation. The results showed that parents have varying ability to be involved in decision making. Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them.},
  author       = {Hallström, Inger and Runeson, Ingrid and Gunnel, Elander},
  issn         = {1477-0989},
  language     = {eng},
  number       = {2},
  pages        = {202--214},
  publisher    = {ARRAY(0xb4dd6e0)},
  series       = {Nursing Ethics},
  title        = {An observation study of the level at which parents participate in decisions during their child’s hospitalisation},
  volume       = {9},
  year         = {2002},
}