Advanced

Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.

Sjödahl Hammarlund, Catharina LU ; Nilsson, Maria H LU and Hagell, Peter LU (2012) In Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 21(Aug 26). p.453-463
Abstract
PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive... (More)
PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. CONCLUSION: By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
volume
21
issue
Aug 26
pages
453 - 463
publisher
Springer
external identifiers
  • WOS:000303405100009
  • PMID:21870190
  • Scopus:84863615519
ISSN
1573-2649
DOI
10.1007/s11136-011-9995-3
language
English
LU publication?
yes
id
6e99c088-c31e-41ad-98ec-59d8ff832b25 (old id 2150667)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/21870190?dopt=Abstract
date added to LUP
2011-09-04 13:06:09
date last changed
2016-11-02 10:29:37
@misc{6e99c088-c31e-41ad-98ec-59d8ff832b25,
  abstract     = {PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. CONCLUSION: By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.},
  author       = {Sjödahl Hammarlund, Catharina and Nilsson, Maria H and Hagell, Peter},
  issn         = {1573-2649},
  language     = {eng},
  number       = {Aug 26},
  pages        = {453--463},
  publisher    = {ARRAY(0x9169f18)},
  series       = {Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation},
  title        = {Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.},
  url          = {http://dx.doi.org/10.1007/s11136-011-9995-3},
  volume       = {21},
  year         = {2012},
}