Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.
Sjödahl Hammarlund, Catharina LU ; Nilsson, Maria H LU
and Hagell, Peter
LU
(2012)
In Quality of Life Research
21(Aug 26).
p.453-463
- Abstract
- PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive... (More)
- PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. CONCLUSION: By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/2150667
- author
- Sjödahl Hammarlund, Catharina
LU
; Nilsson, Maria H
LU
and Hagell, Peter
LU
- organization
- publishing date
- 2012
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Quality of Life Research
- volume
- 21
- issue
- Aug 26
- pages
- 453 - 463
- publisher
- Springer
- external identifiers
-
- wos:000303405100009
- pmid:21870190
- scopus:84863615519
- pmid:21870190
- ISSN
- 1573-2649
- DOI
- 10.1007/s11136-011-9995-3
- language
- English
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Division of Occupational Therapy (Closed 2012) (013025000), Division of Nursing (Closed 2012) (013065000), Division of Physiotherapy (Closed 2012) (013042000)
- id
- 6e99c088-c31e-41ad-98ec-59d8ff832b25 (old id 2150667)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/21870190?dopt=Abstract
- date added to LUP
- 2016-04-04 09:28:35
- date last changed
- 2022-01-29 18:05:29
@article{6e99c088-c31e-41ad-98ec-59d8ff832b25,
abstract = {{PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. CONCLUSION: By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.}},
author = {{Sjödahl Hammarlund, Catharina and Nilsson, Maria H and Hagell, Peter}},
issn = {{1573-2649}},
language = {{eng}},
number = {{Aug 26}},
pages = {{453--463}},
publisher = {{Springer}},
series = {{Quality of Life Research}},
title = {{Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.}},
url = {{http://dx.doi.org/10.1007/s11136-011-9995-3}},
doi = {{10.1007/s11136-011-9995-3}},
volume = {{21}},
year = {{2012}},
}