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Involving children in non-therapeutic research: on the development argument.

Broström, Linus LU and Johansson, Mats LU orcid (2014) In Medicine, Health Care and Philosophy 17(1). p.53-60
Abstract
Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We... (More)
Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We argue that this argument is far too undeveloped to be taken seriously. (Less)
Please use this url to cite or link to this publication:
author
and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Medicine, Health Care and Philosophy
volume
17
issue
1
pages
53 - 60
publisher
Springer
external identifiers
  • pmid:23690163
  • wos:000330735500007
  • scopus:84892881194
ISSN
1572-8633
DOI
10.1007/s11019-013-9486-0
project
Research on decisionally incapacitated individuals. A legal study of the Act concerning the Ethical Review of Research Involving Humans, and its application
language
English
LU publication?
yes
id
fda1d823-d607-46ee-90c1-b71413ea8145 (old id 3804323)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/23690163?dopt=Abstract
date added to LUP
2016-04-04 09:21:52
date last changed
2022-04-23 20:13:09
@article{fda1d823-d607-46ee-90c1-b71413ea8145,
  abstract     = {{Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We argue that this argument is far too undeveloped to be taken seriously.}},
  author       = {{Broström, Linus and Johansson, Mats}},
  issn         = {{1572-8633}},
  language     = {{eng}},
  number       = {{1}},
  pages        = {{53--60}},
  publisher    = {{Springer}},
  series       = {{Medicine, Health Care and Philosophy}},
  title        = {{Involving children in non-therapeutic research: on the development argument.}},
  url          = {{https://lup.lub.lu.se/search/files/15814821/5304350.pdf}},
  doi          = {{10.1007/s11019-013-9486-0}},
  volume       = {{17}},
  year         = {{2014}},
}