Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe
(2016) In European Journal of Health Economics 17. p.7-18- Abstract
Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506... (More)
Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P
(Less)
- author
- organization
- publishing date
- 2016-04-01
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Costs and cost analysis, Cystic fibrosis, Economic burden, Health-related quality of life
- in
- European Journal of Health Economics
- volume
- 17
- pages
- 12 pages
- publisher
- Springer
- external identifiers
-
- scopus:84964048197
- pmid:27059622
- wos:000380717200002
- ISSN
- 1618-7598
- DOI
- 10.1007/s10198-016-0781-6
- language
- English
- LU publication?
- yes
- id
- b96cf4a9-b3c0-442a-95cc-02899edf137a
- date added to LUP
- 2016-06-20 15:47:10
- date last changed
- 2024-03-07 08:23:43
@article{b96cf4a9-b3c0-442a-95cc-02899edf137a,
abstract = {{<p>Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P </p>}},
author = {{Chevreul, Karine and Michel, Morgane and Brigham, Karen Berg and López-Bastida, Julio and Linertová, Renata and Oliva-Moreno, Juan and Serrano-Aguilar, Pedro and Posada-de-la-Paz, Manuel and Taruscio, Domenica and Schieppati, Arrigo and Iskrov, Georgi and Péntek, Márta and von der Schulenburg, Johann Matthias Graf and Kanavos, Panos and Persson, Ulf and Fattore, Giovani}},
issn = {{1618-7598}},
keywords = {{Costs and cost analysis; Cystic fibrosis; Economic burden; Health-related quality of life}},
language = {{eng}},
month = {{04}},
pages = {{7--18}},
publisher = {{Springer}},
series = {{European Journal of Health Economics}},
title = {{Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe}},
url = {{http://dx.doi.org/10.1007/s10198-016-0781-6}},
doi = {{10.1007/s10198-016-0781-6}},
volume = {{17}},
year = {{2016}},
}