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Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe

Chevreul, Karine; Michel, Morgane; Brigham, Karen Berg; López-Bastida, Julio; Linertová, Renata; Oliva-Moreno, Juan; Serrano-Aguilar, Pedro; Posada-de-la-Paz, Manuel; Taruscio, Domenica and Schieppati, Arrigo, et al. (2016) In European Journal of Health Economics 17. p.7-18
Abstract

Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506... (More)

Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P 

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Please use this url to cite or link to this publication:
@misc{b96cf4a9-b3c0-442a-95cc-02899edf137a,
  abstract     = {<p>Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P </p>},
  author       = {Chevreul, Karine and Michel, Morgane and Brigham, Karen Berg and López-Bastida, Julio and Linertová, Renata and Oliva-Moreno, Juan and Serrano-Aguilar, Pedro and Posada-de-la-Paz, Manuel and Taruscio, Domenica and Schieppati, Arrigo and Iskrov, Georgi and Péntek, Márta and von der Schulenburg, Johann Matthias Graf and Kanavos, Panos and Persson, Ulf and Fattore, Giovani},
  issn         = {1618-7598},
  keyword      = {Costs and cost analysis,Cystic fibrosis,Economic burden,Health-related quality of life},
  language     = {eng},
  month        = {04},
  pages        = {7--18},
  publisher    = {ARRAY(0x82f03d0)},
  series       = {European Journal of Health Economics},
  title        = {Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe},
  url          = {http://dx.doi.org/10.1007/s10198-016-0781-6},
  volume       = {17},
  year         = {2016},
}