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- 2020
-
Communicating genetic information to family members : analysis of consent forms for diagnostic genomic sequencing
Phillips, Amicia ; Niemiec, Emilia LU
; Howard, Heidi Carmen
LU
; Kagkelari, Kalliopi
; Borry, Pascal
and Vears, Danya F.
(2020)
In European Journal of Human Genetics
28(9).
p.1160-1167
Mark
-
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
Middleton, Anna ; Milne, Richard ; Howard, Heidi LU ; Niemiec, Emilia LU
; Robarts, Lauren
; Critchley, Christine
; Nicol, Dianne
; Prainsack, Barbara
; Atutornu, Jerome
and Vears, Danya F.
, et al.
(2020)
In European Journal of Human Genetics
28(4).
p.424-434
Mark
- 2019
-
Attitudes of publics who are unwilling to donate DNA data for research
Middleton, Anna ; Milne, Richard ; Thorogood, Adrian ; Kleiderman, Erika ; Niemiec, Emilia LU
; Prainsack, Barbara
; Farley, Lauren
; Bevan, Paul
; Steed, Claire
and Smith, James
, et al.
(2019)
In European Journal of Medical Genetics
62(5).
p.316-323
Mark
-
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Milne, Richard ; Morley, Katherine I. ; Howard, Heidi LU ; Niemiec, Emilia LU
; Nicol, Dianne
; Critchley, Christine
; Prainsack, Barbara
; Vears, Danya
; Smith, James
and Steed, Claire
, et al.
(2019)
In Human Genetics
138(11-12).
p.1237-1246
Mark
- 2018
-
Readability of informed consent forms for whole-exome and whole-genome sequencing
Niemiec, Emilia LU
; Vears, Danya F.
; Borry, Pascal
and Howard, Heidi Carmen
LU
(2018)
In Journal of Community Genetics
9(2).
p.143-151
Mark
-
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms
Vears, Danya F. ; Niemiec, Emilia LU
; Howard, Heidi Carmen
LU
and Borry, Pascal
(2018)
In European Journal of Human Genetics
26(12).
p.1743-1751
Mark
-
'Your DNA, Your Say' : global survey gathering attitudes toward genomics: design, delivery and methods
Middleton, Anna ; Niemiec, Emilia LU
; Prainsack, Barbara
; Bobe, Jason
; Farley, Lauren
; Steed, Claire
; Smith, James
; Bevan, Paul
; Bonhomme, Natasha
and Kleiderman, Erika
, et al.
(2018)
In Personalized Medicine
15(4).
p.311-318
Mark
- 2015
-
Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing
Borry, Pascal ; Chokoshvili, Davit ; Niemiec, Emilia LU
; Kalokairinou, Louiza
; Vears, Danya F.
and Howard, Heidi Carmen
LU
(2015)
p.481-497
Mark