Att leva med urinläckage till följd av ryggmärgsskada: självkänsla och psykiskt välmående ur barns, ungdomars och föräldrars perspektiv
(2007)Department of Psychology
- Abstract
- The aim of the study is to explore the meaning of living with urinary incontinence caused by Spina Bifida, self-esteem, psychological well-beeing and expectations on treatment of urinary incontinence in 10 children and adolescents, 9-20 years old, as well as their parents perspective. The study was conducted through semi-structured interviewes as well as self-reports about self-esteem ("I think I am"; Ouvinen-Birgerstam, 1999) and psychological well-beeing (Beck Ungdomsskalor; Beck, Beck & Jolly, 2004). To examine the parents insight in their childrens situation and well-beeing parents proxy-reports was compared to their childrens self-reports. The results showed that psychological well-beeing and self-esteem of the children and... (More)
- The aim of the study is to explore the meaning of living with urinary incontinence caused by Spina Bifida, self-esteem, psychological well-beeing and expectations on treatment of urinary incontinence in 10 children and adolescents, 9-20 years old, as well as their parents perspective. The study was conducted through semi-structured interviewes as well as self-reports about self-esteem ("I think I am"; Ouvinen-Birgerstam, 1999) and psychological well-beeing (Beck Ungdomsskalor; Beck, Beck & Jolly, 2004). To examine the parents insight in their childrens situation and well-beeing parents proxy-reports was compared to their childrens self-reports. The results showed that psychological well-beeing and self-esteem of the children and adolescents in this study was comparable to normgroups, but that there was big individual differences. The parents proxy-reports are comparable to their childrens self-reports, but vary depending on the domain beeing estimated. Anxiety and depression tends to increase with age. The urinary-incontinence brings constant worry and uncertainty as well as practical consequences like routines to handle the incontinence, which leads to limited freedom, ability to get around and self-efficacy. Need of help from others, level of urinary-incontinence and bullying are factors that further influence the childrens self-esteem and psychological well-beeing. The parents psychological well-beeing is also affected by the childrens disabilities, they have good insight in their childrens situation but worry more about the medical consequences and their childrens future. The results indicate a great variation within the group and that there are many other factors, except the urinary-incontinence, that influence the children and adolescents self-esteem and psychological well-beeing. Treatment should be individualized and focused on both children, adolescents and parents. (Less)
Please use this url to cite or link to this publication:
http://lup.lub.lu.se/student-papers/record/1322935
- author
- Engman, Malin and Matele, Sara
- supervisor
- organization
- year
- 2007
- type
- H3 - Professional qualifications (4 Years - )
- subject
- keywords
- psychological well-beeing, urinary incontinence, Spina Bifida, parents proxy-reports, children, adolescents, Botulinum A-toxin., Psychology, Psykologi
- language
- Swedish
- id
- 1322935
- date added to LUP
- 2007-06-26 00:00:00
- date last changed
- 2009-11-17 13:01:03
@misc{1322935,
abstract = {{The aim of the study is to explore the meaning of living with urinary incontinence caused by Spina Bifida, self-esteem, psychological well-beeing and expectations on treatment of urinary incontinence in 10 children and adolescents, 9-20 years old, as well as their parents perspective. The study was conducted through semi-structured interviewes as well as self-reports about self-esteem ("I think I am"; Ouvinen-Birgerstam, 1999) and psychological well-beeing (Beck Ungdomsskalor; Beck, Beck & Jolly, 2004). To examine the parents insight in their childrens situation and well-beeing parents proxy-reports was compared to their childrens self-reports. The results showed that psychological well-beeing and self-esteem of the children and adolescents in this study was comparable to normgroups, but that there was big individual differences. The parents proxy-reports are comparable to their childrens self-reports, but vary depending on the domain beeing estimated. Anxiety and depression tends to increase with age. The urinary-incontinence brings constant worry and uncertainty as well as practical consequences like routines to handle the incontinence, which leads to limited freedom, ability to get around and self-efficacy. Need of help from others, level of urinary-incontinence and bullying are factors that further influence the childrens self-esteem and psychological well-beeing. The parents psychological well-beeing is also affected by the childrens disabilities, they have good insight in their childrens situation but worry more about the medical consequences and their childrens future. The results indicate a great variation within the group and that there are many other factors, except the urinary-incontinence, that influence the children and adolescents self-esteem and psychological well-beeing. Treatment should be individualized and focused on both children, adolescents and parents.}},
author = {{Engman, Malin and Matele, Sara}},
language = {{swe}},
note = {{Student Paper}},
title = {{Att leva med urinläckage till följd av ryggmärgsskada: självkänsla och psykiskt välmående ur barns, ungdomars och föräldrars perspektiv}},
year = {{2007}},
}