Att navigera en storm - en tematisk analys om livskvalitet hos ungdomar med bipolär sjukdom
(2019) PSPR14 20192Department of Psychology
- Abstract
- The aim of this study was to further understand quality of life (QoL) among adolescents with pediatric bipolar disorder (PBD) by investigating what they regard of the concept of QoL, their own QoL, as well as the QoL-instrument LkBS. This was done using semi-structured interviews with seven adolescents (12-18 years), which were analyzed with thematic analysis. From the analysis four main themes were chosen: Bipolar Disorder – Shackles and Freedom, Prerequisites for Quality of Life, The Use of a Quality of Life Instrument and Vague Reference Points. The concept of QoL was perceived as important and much needed, where treatment and social support were related to satisfactory QoL. Unwanted side-effects, limited treatment effect, stigma as... (More)
- The aim of this study was to further understand quality of life (QoL) among adolescents with pediatric bipolar disorder (PBD) by investigating what they regard of the concept of QoL, their own QoL, as well as the QoL-instrument LkBS. This was done using semi-structured interviews with seven adolescents (12-18 years), which were analyzed with thematic analysis. From the analysis four main themes were chosen: Bipolar Disorder – Shackles and Freedom, Prerequisites for Quality of Life, The Use of a Quality of Life Instrument and Vague Reference Points. The concept of QoL was perceived as important and much needed, where treatment and social support were related to satisfactory QoL. Unwanted side-effects, limited treatment effect, stigma as well as social exclusion were related to worse QoL. LkBS was perceived as comprehensible, relevant and as potentially helpful in facilitating their own and others’ understanding of their QoL. But it was also perceived as limited and facile where their answers didn’t necessarily reflect their reality. They also mentioned complicating factors in state-dependent memory and the presence of interindividual differences between adolescents with PBD. In conclusion, the study showed that QoL is deserving of more attention where the continued participation of adolescents may prove valuable. Though studies with more participants and a psychometric validation is required to be able to say more about how generalizable the results are. (Less)
- Abstract (Swedish)
- Syftet med studien var att utvidga förståelsen av livskvalitet hos ungdomar med bipolär sjukdom genom att undersöka deras uppfattningar rörande begreppet livskvalitet, hur de uppfattar sin egen livskvalitet och deras upplevelse av att skatta sin livskvalitet med livskvalitetsformuläret LkBS. Detta undersöktes genom semi-strukturerade intervjuer med sju ungdomar (12–18 år), som analyserades med tematisk analys. Analysen resulterade i fyra huvudteman: Bipolär sjukdom – bojor och frihet, Livskvalitetens förutsättningar, Nyttan med ett livskvalitetsformulär och Oklara referenspunkter. Begreppet livskvalitet ansågs viktigt och behövligt där behandling och socialt stöd var relaterade med god livskvalitet. Oönskade biverkningar, begränsad... (More)
- Syftet med studien var att utvidga förståelsen av livskvalitet hos ungdomar med bipolär sjukdom genom att undersöka deras uppfattningar rörande begreppet livskvalitet, hur de uppfattar sin egen livskvalitet och deras upplevelse av att skatta sin livskvalitet med livskvalitetsformuläret LkBS. Detta undersöktes genom semi-strukturerade intervjuer med sju ungdomar (12–18 år), som analyserades med tematisk analys. Analysen resulterade i fyra huvudteman: Bipolär sjukdom – bojor och frihet, Livskvalitetens förutsättningar, Nyttan med ett livskvalitetsformulär och Oklara referenspunkter. Begreppet livskvalitet ansågs viktigt och behövligt där behandling och socialt stöd var relaterade med god livskvalitet. Oönskade biverkningar, begränsad behandlingseffekt och stigma samt utanförskap var relaterade med sämre livskvalitet. LkBS uppfattades som begripligt, relevant och som potentiellt hjälpsamt för att underlätta sin egen och andras förståelse av deras livskvalitet. Men det upplevdes även som begränsat och ytligt i att svaren inte nödvändigtvis reflekterade deras verklighet. De uppgav även komplicerande faktorer i hur stämningsläge påverkar minne och att de finns en interindividuell variation även mellan ungdomar med bipolär sjukdom. Studien visade sammantaget att livskvalitet är förtjänt av mer uppmärksamhet där ungdomarnas deltagande kan vara värdefullt. Studier med fler deltagare och en psykometrisk validering behövs dock för att kunna säga mer om hur generaliserbara resultaten är. (Less)
Please use this url to cite or link to this publication:
http://lup.lub.lu.se/student-papers/record/8993784
- author
- Karlsson, Fredrik LU
- supervisor
- organization
- course
- PSPR14 20192
- year
- 2019
- type
- H3 - Professional qualifications (4 Years - )
- subject
- keywords
- pediatric bipolar disorder, quality of life, thematic analysis, interview
- language
- Swedish
- id
- 8993784
- date added to LUP
- 2019-09-05 09:35:50
- date last changed
- 2019-09-05 09:35:50
@misc{8993784,
abstract = {{The aim of this study was to further understand quality of life (QoL) among adolescents with pediatric bipolar disorder (PBD) by investigating what they regard of the concept of QoL, their own QoL, as well as the QoL-instrument LkBS. This was done using semi-structured interviews with seven adolescents (12-18 years), which were analyzed with thematic analysis. From the analysis four main themes were chosen: Bipolar Disorder – Shackles and Freedom, Prerequisites for Quality of Life, The Use of a Quality of Life Instrument and Vague Reference Points. The concept of QoL was perceived as important and much needed, where treatment and social support were related to satisfactory QoL. Unwanted side-effects, limited treatment effect, stigma as well as social exclusion were related to worse QoL. LkBS was perceived as comprehensible, relevant and as potentially helpful in facilitating their own and others’ understanding of their QoL. But it was also perceived as limited and facile where their answers didn’t necessarily reflect their reality. They also mentioned complicating factors in state-dependent memory and the presence of interindividual differences between adolescents with PBD. In conclusion, the study showed that QoL is deserving of more attention where the continued participation of adolescents may prove valuable. Though studies with more participants and a psychometric validation is required to be able to say more about how generalizable the results are.}},
author = {{Karlsson, Fredrik}},
language = {{swe}},
note = {{Student Paper}},
title = {{Att navigera en storm - en tematisk analys om livskvalitet hos ungdomar med bipolär sjukdom}},
year = {{2019}},
}