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Bristande delaktighet, information och respekt: en explorativ studie om patienters upplevda autonomi inom vuxenpsykiatrin

Naderi, Arwin LU and Söderberg, Thomas LU (2023) PSPR14 20231
Department of Psychology
Abstract (Swedish)
Autonomins roll i vården är svårbegriplig och varken patient eller vårdgivare har en tydlig uppfattning av begreppet. Detta resulterar i att patienters rättigheter regelbundet överträds vilket förhindrar tillfrisknandet och riskerar att vidare skada patienter. Syftet med denna explorativa studie var att undersöka och analysera anmälares (patienter och anhöriga) upplevelser av kränkningar inom den svenska vuxenpsykiatrin. Kodning genomfördes på inkomna IVO anmälningar mellan 2013-2019 som berörde autonomiöveträdelser. Initialt identifierades 15 återkommande typer av autonomiöverträdelser som sedan sammanställdes i de fyra underkategorierna; överkörd/motarbetad, inte delaktig, felaktig/lögnaktig information och bristande information.... (More)
Autonomins roll i vården är svårbegriplig och varken patient eller vårdgivare har en tydlig uppfattning av begreppet. Detta resulterar i att patienters rättigheter regelbundet överträds vilket förhindrar tillfrisknandet och riskerar att vidare skada patienter. Syftet med denna explorativa studie var att undersöka och analysera anmälares (patienter och anhöriga) upplevelser av kränkningar inom den svenska vuxenpsykiatrin. Kodning genomfördes på inkomna IVO anmälningar mellan 2013-2019 som berörde autonomiöveträdelser. Initialt identifierades 15 återkommande typer av autonomiöverträdelser som sedan sammanställdes i de fyra underkategorierna; överkörd/motarbetad, inte delaktig, felaktig/lögnaktig information och bristande information. Chi2-test användes för att undersöka associationer mellan de fyra underkategorierna samt mellan relevanta variabler och underkategorierna. Kodningen resulterade i 406 distinkta fall av autonomiöverträdelser. Av dessa fall utgjorde underkategorin överkörd/motarbetad 38,2%, inte delaktig 14,5%, felaktig/lögnaktig information 19,2% och bristande information 28,1%. Studiens enda signifikanta association hittades mellan underkategorierna och variabeln anmäld part. Detta indikerar att enskild personal i större utsträckning anmäls för inte delaktig medan verksamheter i större utsträckning anmäls för bristande information. I en klinisk kontext kan underkategorierna medföra en konkretisering och avgränsning av essentiella aspekter av autonomi som frekvent överträds inom hälso- och sjukvård. Framtida forskning bör vidare tydliggöra begreppet autonomi och dess vikt inom vården. Detta för att kunna etablera distinkta riktlinjer och arbetssätt som skapar en tydligare kravställning på vårdgivarens skyldigheter såväl som patientens rättigheter. (Less)
Abstract
The role of autonomy in healthcare is unclear, and neither patients nor healthcare providers have a clear understanding of the concept. This results inpatients' rights being violated regularly, which hinders recovery and risks further
harming patients. The purpose of this exploratory study was to investigate and
analyze the reporters’ (patients and relatives) experiences of violations within the Swedish adult psychiatry system. Coding was conducted on incoming Swedish
Health and Care Inspectorate reports between 2013-2019 that pertained to violations
of autonomy. Initially, 15 recurring types of autonomy violations were identified,
which were subsequently compiled into four subcategories: Overridden/obstructed,
Not involved,... (More)
The role of autonomy in healthcare is unclear, and neither patients nor healthcare providers have a clear understanding of the concept. This results inpatients' rights being violated regularly, which hinders recovery and risks further
harming patients. The purpose of this exploratory study was to investigate and
analyze the reporters’ (patients and relatives) experiences of violations within the Swedish adult psychiatry system. Coding was conducted on incoming Swedish
Health and Care Inspectorate reports between 2013-2019 that pertained to violations
of autonomy. Initially, 15 recurring types of autonomy violations were identified,
which were subsequently compiled into four subcategories: Overridden/obstructed,
Not involved, Incorrect/dishonest information and Insufficient information.
Chi2-tests were used to investigate associations between the four subcategories and
potentially relevant variables. The coding resulted in 406 distinct cases of autonomy
violations. Of these cases, the subcategory of overridden/obstructed accounted for
38,2%, not involved 14,5%, incorrect/dishonest information 19,2%, and insufficient
information 28,1%. The study's only significant association was found between the
subcategories and the reported party variable. This indicates that individual staff
members are more frequently reported regarding the subcategory not involved, while
organizations are more frequently reported for insufficient information. In a clinical context, the subcategories can provide a clarification and delimitation of essential aspects of autonomy that are frequently violated in healthcare. Future research should further clarify the concept of autonomy and its importance in healthcare to establish distinct guidelines and approaches that create clearer expectations of healthcare providers' obligations as well as patients' rights. (Less)
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author
Naderi, Arwin LU and Söderberg, Thomas LU
supervisor
organization
course
PSPR14 20231
year
type
H3 - Professional qualifications (4 Years - )
subject
keywords
autonomi, etiska överträdelser, Inspektionen för vård och omsorg (IVO), vuxenpsykiatri, autonomy, ethical violations, Swedish Health and Care Inspectorate, adult psychiatry
language
Swedish
id
9117653
date added to LUP
2023-05-31 08:57:53
date last changed
2023-05-31 08:57:53
@misc{9117653,
  abstract     = {{The role of autonomy in healthcare is unclear, and neither patients nor healthcare providers have a clear understanding of the concept. This results inpatients' rights being violated regularly, which hinders recovery and risks further
harming patients. The purpose of this exploratory study was to investigate and
analyze the reporters’ (patients and relatives) experiences of violations within the Swedish adult psychiatry system. Coding was conducted on incoming Swedish
Health and Care Inspectorate reports between 2013-2019 that pertained to violations
of autonomy. Initially, 15 recurring types of autonomy violations were identified,
which were subsequently compiled into four subcategories: Overridden/obstructed,
Not involved, Incorrect/dishonest information and Insufficient information.
Chi2-tests were used to investigate associations between the four subcategories and
potentially relevant variables. The coding resulted in 406 distinct cases of autonomy
violations. Of these cases, the subcategory of overridden/obstructed accounted for
38,2%, not involved 14,5%, incorrect/dishonest information 19,2%, and insufficient
information 28,1%. The study's only significant association was found between the
subcategories and the reported party variable. This indicates that individual staff
members are more frequently reported regarding the subcategory not involved, while
organizations are more frequently reported for insufficient information. In a clinical context, the subcategories can provide a clarification and delimitation of essential aspects of autonomy that are frequently violated in healthcare. Future research should further clarify the concept of autonomy and its importance in healthcare to establish distinct guidelines and approaches that create clearer expectations of healthcare providers' obligations as well as patients' rights.}},
  author       = {{Naderi, Arwin and Söderberg, Thomas}},
  language     = {{swe}},
  note         = {{Student Paper}},
  title        = {{Bristande delaktighet, information och respekt: en explorativ studie om patienters upplevda autonomi inom vuxenpsykiatrin}},
  year         = {{2023}},
}