"Hela livet kopplar ju ner"
(2024) PSPR14 20241Department of Psychology
- Abstract (Swedish)
- “Hela livet kopplar ju ner” - En reflexiv tematisk analys av mammors erfarenheter av att ha ett barn med postinfektiöst tillstånd
Föräldrar med långvarigt sjuka barn uppvisar sämre psykisk hälsa och större risk för utmattning än föräldrar med friska barn, däremot saknas kunskap om erfarenheter hos föräldrar till barn med postinfektiösa tillstånd som postcovid, myalgisk encefalomyelit/’chronic fatigue syndrome’ (ME/CFS) och pediatric acute-onset neuropsychiatric syndrome’/’pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections’ (PANS/PANDAS). Syftet med studien var att fördjupa förståelsen för hur föräldrar beskriver av sina erfarenheter av att ha ett barn med postinfektiöst tillstånd. Nio... (More) - “Hela livet kopplar ju ner” - En reflexiv tematisk analys av mammors erfarenheter av att ha ett barn med postinfektiöst tillstånd
Föräldrar med långvarigt sjuka barn uppvisar sämre psykisk hälsa och större risk för utmattning än föräldrar med friska barn, däremot saknas kunskap om erfarenheter hos föräldrar till barn med postinfektiösa tillstånd som postcovid, myalgisk encefalomyelit/’chronic fatigue syndrome’ (ME/CFS) och pediatric acute-onset neuropsychiatric syndrome’/’pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections’ (PANS/PANDAS). Syftet med studien var att fördjupa förståelsen för hur föräldrar beskriver av sina erfarenheter av att ha ett barn med postinfektiöst tillstånd. Nio semistrukturerade intervjuer genomfördes med mammor och analyserades med reflexiv tematisk analys. Analysen identifierade två huvudteman: Orientera utan karta och kompass och Allt för mitt barn. Det första huvudtemat beskriver hur deltagarna försöker förstå vad för sjukdom deras barn har drabbats av och att känna sig utlämnad till en oviss tillvaro med bristande stöd från sjukvården. Det andra huvudtemat beskriver hur deltagarna gör allt i sin makt för att försöka få sitt barn att bli friskt, där egna behov och känslor uppoffras till förmån för barnets förbättrade hälsa. Resultaten visade att bli misstrodd och ifrågasatt i sina försök att hjälpa barnet var en ytterligare belastning för deltagarna, utöver att ta hand om sitt långvarigt sjuka barn. Deltagarnas erfarenheter var samstämmig med tidigare forskning om föräldraskap till sjuka barn. Detta synliggjorde vikten av att sjukvården som möter barn med postinfektiösa tillstånd validerar den belastande situation som föräldrar befinner sig i och tar tillvara på föräldrarnas erfarenheter. Av vikt är också att hjälpa föräldrar att hitta utrymme för återhämtning även i en påfrestande situation, för att möjligen förebygga ökad psykisk ohälsa eller utmattning. (Less) - Abstract
- “Life comes to a halt” A reflexive thematic analysis of mothers’ experiences of having a child with post-infectious syndrome
Parents with chronically ill children exhibit worse mental health and greater risk för burnout than parents with healthy children, however there is lacking knowledge of experiences of parents to children with post-infectious syndrome such as post covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and pediatric acute-onset neuropsychiatric syndrome/pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANS/PANDAS). The purpose of this study was to deepen the understanding of parents’ experiences of having a child with post-infectious syndrome. Nine semi-... (More) - “Life comes to a halt” A reflexive thematic analysis of mothers’ experiences of having a child with post-infectious syndrome
Parents with chronically ill children exhibit worse mental health and greater risk för burnout than parents with healthy children, however there is lacking knowledge of experiences of parents to children with post-infectious syndrome such as post covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and pediatric acute-onset neuropsychiatric syndrome/pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANS/PANDAS). The purpose of this study was to deepen the understanding of parents’ experiences of having a child with post-infectious syndrome. Nine semi- structured interviews were carried out with mothers and analyzed with reflexive thematic analysis. The analysis resulted in two main themes: Orientation without map and compass and Everything for my child. The first main theme describes how the interviewees try to understand the illness that is affecting the child and how they feel banished to an uncertain existence with low or no support from health care services. The second main theme describe how the interviewees try to do everything within their power to help the child get healthy, where their own needs and feelings are sacrificed to help the child. The results showed that not feeling believed and questioned was an additional burden on top of caring for an ill child. The interviewees experiences were concordant with previous research, with the addition of the burden of having their child’s illness questioned. This emphasizes the importance of that health care services validating the burdensome experiences of parents to children with post-infectious syndrome and taking parents’ experiences into account when treating the child. Furthermore, it is important to help parents find opportunities to recuperate even when in a stressful situation, to potentially prevent worsened mental health or burnout. (Less)
Please use this url to cite or link to this publication:
http://lup.lub.lu.se/student-papers/record/9159833
- author
- Lundgren, Emma LU and Wikforss, Emma LU
- supervisor
- organization
- alternative title
- En reflexiv teamtisk analys av mammors erfarenheter av att ha ett barn med postinfektiöst tillstånd
- course
- PSPR14 20241
- year
- 2024
- type
- H3 - Professional qualifications (4 Years - )
- subject
- keywords
- postinfektiösa tillstånd, postcovid, ME/CFS, PANS/PANDAS, moderskap, föräldraskap, post-infectious syndrome, post covid-19 condition, motherhood, parenting
- language
- Swedish
- id
- 9159833
- date added to LUP
- 2024-06-17 10:29:54
- date last changed
- 2024-06-17 10:29:54
@misc{9159833,
abstract = {{“Life comes to a halt” A reflexive thematic analysis of mothers’ experiences of having a child with post-infectious syndrome
Parents with chronically ill children exhibit worse mental health and greater risk för burnout than parents with healthy children, however there is lacking knowledge of experiences of parents to children with post-infectious syndrome such as post covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and pediatric acute-onset neuropsychiatric syndrome/pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANS/PANDAS). The purpose of this study was to deepen the understanding of parents’ experiences of having a child with post-infectious syndrome. Nine semi- structured interviews were carried out with mothers and analyzed with reflexive thematic analysis. The analysis resulted in two main themes: Orientation without map and compass and Everything for my child. The first main theme describes how the interviewees try to understand the illness that is affecting the child and how they feel banished to an uncertain existence with low or no support from health care services. The second main theme describe how the interviewees try to do everything within their power to help the child get healthy, where their own needs and feelings are sacrificed to help the child. The results showed that not feeling believed and questioned was an additional burden on top of caring for an ill child. The interviewees experiences were concordant with previous research, with the addition of the burden of having their child’s illness questioned. This emphasizes the importance of that health care services validating the burdensome experiences of parents to children with post-infectious syndrome and taking parents’ experiences into account when treating the child. Furthermore, it is important to help parents find opportunities to recuperate even when in a stressful situation, to potentially prevent worsened mental health or burnout.}},
author = {{Lundgren, Emma and Wikforss, Emma}},
language = {{swe}},
note = {{Student Paper}},
title = {{"Hela livet kopplar ju ner"}},
year = {{2024}},
}