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Från diagnos till död - en närståendestudie. Närståendes upplevelser vid ALS och elakartad hjärntumör.

Gunnarsson, Ingrid LU and Sundström, Ulrica LU (2011) SOAM01 20102
School of Social Work
Abstract
The purpose of this study was to gain deeper understanding of how family members to people who died from ALS or malign brain tumours experienced the time from when the diagnosis was given to the actual time of decease. The frame of questions during this investigation was: How was the diagnosis given? How did the family members experience the care provided by the hospital’s neurological department? How did the family members experience the contacts and care provided from other caregivers and authorities? How do the family members contemplate over their own emotional experiences during the time of illness and now, and how do the family members experience their own health during the time of illness and now? The study included persons related... (More)
The purpose of this study was to gain deeper understanding of how family members to people who died from ALS or malign brain tumours experienced the time from when the diagnosis was given to the actual time of decease. The frame of questions during this investigation was: How was the diagnosis given? How did the family members experience the care provided by the hospital’s neurological department? How did the family members experience the contacts and care provided from other caregivers and authorities? How do the family members contemplate over their own emotional experiences during the time of illness and now, and how do the family members experience their own health during the time of illness and now? The study included persons related to all patients (n=86) diagnosed with ALS or brain tumours and treated at the Department of Neurology, Skåne University Hospital - Lund from January 2007- June 2009. The participants consisted of 17 family members to patients with ALS and 69 family members to patients with brain tumours. Information was obtained through questionnaires and processed through a quantitative perspective. The theoretical approach of this study is Antonovsky’s theories about sence of coherence (SOC), Cullberg’s theory of crisis and theories about social network. The results show that family members request to be met with empathy, knowledge and availability. Results also show the importance of how the diagnosis is given. Family members request continuous information and would like to see a better coordinated cooperation between caregivers. Family members wish to be seen, heard, and acknowledged. Result also shows that psychosocial support is of crucial importance and needs to be further developed. (Less)
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author
Gunnarsson, Ingrid LU and Sundström, Ulrica LU
supervisor
organization
course
SOAM01 20102
year
type
H1 - Master's Degree (One Year)
subject
keywords
KASAM, psychosocial, malign brain tumours, Family members, ALS, self-rated health. , social network
language
Swedish
id
1786378
date added to LUP
2011-02-17 11:14:16
date last changed
2011-02-17 11:14:16
@misc{1786378,
  abstract     = {The purpose of this study was to gain deeper understanding of how family members to people who died from ALS or malign brain tumours experienced the time from when the diagnosis was given to the actual time of decease. The frame of questions during this investigation was: How was the diagnosis given? How did the family members experience the care provided by the hospital’s neurological department? How did the family members experience the contacts and care provided from other caregivers and authorities? How do the family members contemplate over their own emotional experiences during the time of illness and now, and how do the family members experience their own health during the time of illness and now? The study included persons related to all patients (n=86) diagnosed with ALS or brain tumours and treated at the Department of Neurology, Skåne University Hospital - Lund from January 2007- June 2009. The participants consisted of 17 family members to patients with ALS and 69 family members to patients with brain tumours. Information was obtained through questionnaires and processed through a quantitative perspective. The theoretical approach of this study is Antonovsky’s theories about sence of coherence (SOC), Cullberg’s theory of crisis and theories about social network. The results show that family members request to be met with empathy, knowledge and availability. Results also show the importance of how the diagnosis is given. Family members request continuous information and would like to see a better coordinated cooperation between caregivers. Family members wish to be seen, heard, and acknowledged. Result also shows that psychosocial support is of crucial importance and needs to be further developed.},
  author       = {Gunnarsson, Ingrid and Sundström, Ulrica},
  keyword      = {KASAM,psychosocial,malign brain tumours,Family members,ALS,self-rated health. 
  
,social network},
  language     = {swe},
  note         = {Student Paper},
  title        = {Från diagnos till död - en närståendestudie. Närståendes upplevelser vid ALS och elakartad hjärntumör.},
  year         = {2011},
}