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Parents’ and children’s involvement in decision-making during hospitalisation

Hallström, Inger LU (2004) In Nursing Times Research 9(4). p.263-269
Abstract
Different reasons are given as to why children and their parents should be involved in discussions and decisions regarding the child’s care. The UN Convention on the Rights of the Child formulates the needs of children and young people in terms of human rights. Ethical duties of health professionals include the obligation to enhance their patients’ competence and ability to participate. The concepts of autonomy, integrity, competence, assent and consent are complex and sometimes difficult to relate to practice. However, they are essential in paediatric care. In earlier studies we observed 24 children and 35 parents during the child’s hospitalisation, and situations including a decision-making process were identified.



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Different reasons are given as to why children and their parents should be involved in discussions and decisions regarding the child’s care. The UN Convention on the Rights of the Child formulates the needs of children and young people in terms of human rights. Ethical duties of health professionals include the obligation to enhance their patients’ competence and ability to participate. The concepts of autonomy, integrity, competence, assent and consent are complex and sometimes difficult to relate to practice. However, they are essential in paediatric care. In earlier studies we observed 24 children and 35 parents during the child’s hospitalisation, and situations including a decision-making process were identified.



Analysis included assessing and grading both children’s and parents’ involvement in decisions according to a five-level scale of different degrees of respect. The results emphasised that both children and parents had varying abilities to become involved in the decision-making process. Promoting children’s rights is one of the most important roles for the children’s nurse. Having a voice in decision-making helps the child to develop a sense of him-herself as a person and gives the parents a feeling that they are part of a team giving their child optimal care during hospitalisation. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Nursing Times Research
volume
9
issue
4
pages
263 - 269
publisher
SAGE Publications
DOI
10.1177/136140960400900404
language
English
LU publication?
yes
id
d867b055-6212-4cac-bd6e-6e4f5d287fb5 (old id 1131114)
date added to LUP
2008-06-16 09:03:25
date last changed
2016-08-16 15:13:21
@misc{d867b055-6212-4cac-bd6e-6e4f5d287fb5,
  abstract     = {Different reasons are given as to why children and their parents should be involved in discussions and decisions regarding the child’s care. The UN Convention on the Rights of the Child formulates the needs of children and young people in terms of human rights. Ethical duties of health professionals include the obligation to enhance their patients’ competence and ability to participate. The concepts of autonomy, integrity, competence, assent and consent are complex and sometimes difficult to relate to practice. However, they are essential in paediatric care. In earlier studies we observed 24 children and 35 parents during the child’s hospitalisation, and situations including a decision-making process were identified.<br/><br>
<br/><br>
Analysis included assessing and grading both children’s and parents’ involvement in decisions according to a five-level scale of different degrees of respect. The results emphasised that both children and parents had varying abilities to become involved in the decision-making process. Promoting children’s rights is one of the most important roles for the children’s nurse. Having a voice in decision-making helps the child to develop a sense of him-herself as a person and gives the parents a feeling that they are part of a team giving their child optimal care during hospitalisation.},
  author       = {Hallström, Inger},
  language     = {eng},
  number       = {4},
  pages        = {263--269},
  publisher    = {ARRAY(0x7cc1ba8)},
  series       = {Nursing Times Research},
  title        = {Parents’ and children’s involvement in decision-making during hospitalisation},
  url          = {http://dx.doi.org/10.1177/136140960400900404},
  volume       = {9},
  year         = {2004},
}