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Structure of long-term home and institutional care systems in Europe

Rahm Hallberg, Ingalill LU ; Karlsson, Staffan LU ; Lethin, Connie LU orcid and Melin Emilsson, Ulla LU (2011) In Right Time Place Care (RTPC)
Abstract
The aim of this part of the RightTimePlaceCare study (WP2) was to describe and analyse the European health, social care and welfare systems, advocacy and informal caregiver support systems for patients with dementia. The description and analyses covers the continuum of care from diagnosis, informal care, contributions from civic society, public home care and the intermediate forms of care, to the long-term institutionalised care, and end of life care. In a first step, the terminology was developed and meanings of different terms used in relation to dementia care were collected, analysed, defined and categorised. Thereafter the terminology was used to develop a template organised on the Y-axis as being the course of the dementia disease as... (More)
The aim of this part of the RightTimePlaceCare study (WP2) was to describe and analyse the European health, social care and welfare systems, advocacy and informal caregiver support systems for patients with dementia. The description and analyses covers the continuum of care from diagnosis, informal care, contributions from civic society, public home care and the intermediate forms of care, to the long-term institutionalised care, and end of life care. In a first step, the terminology was developed and meanings of different terms used in relation to dementia care were collected, analysed, defined and categorised. Thereafter the terminology was used to develop a template organised on the Y-axis as being the course of the dementia disease as described by the OECD in 2004, and on the X-axis as being the type of care provided, organised in accordance with the process of the disease from dementia screening to end of life care. In addition each country was asked to provide an overall description of the care system they offered with regard to the national directives and financing of their dementia care system. The primary source of information was written reports from different sources. Official documents, epidemiological studies and descriptions of the care system, in particular dementia care system offered in their country. In addition interviews with responsible managers, providers or the equivalent in relevant care and service organisations, with persons in consumer/user organisations, with staff, professional employees and purchasers in a municipality or another representative for a civic administrative area were recommended. (Less)
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author
; ; and
organization
publishing date
type
Book/Report
publication status
submitted
subject
keywords
long-term formal professional home care, long-term institutional nursing care systems, inter-sectoral communication
in
Right Time Place Care (RTPC)
pages
114 pages
publisher
European Commission
report number
D2.1
language
English
LU publication?
yes
id
eac93a5a-b591-4da7-926b-9807a359eecf (old id 4732795)
date added to LUP
2016-04-04 11:13:41
date last changed
2018-11-21 21:03:28
@techreport{eac93a5a-b591-4da7-926b-9807a359eecf,
  abstract     = {{The aim of this part of the RightTimePlaceCare study (WP2) was to describe and analyse the European health, social care and welfare systems, advocacy and informal caregiver support systems for patients with dementia. The description and analyses covers the continuum of care from diagnosis, informal care, contributions from civic society, public home care and the intermediate forms of care, to the long-term institutionalised care, and end of life care. In a first step, the terminology was developed and meanings of different terms used in relation to dementia care were collected, analysed, defined and categorised. Thereafter the terminology was used to develop a template organised on the Y-axis as being the course of the dementia disease as described by the OECD in 2004, and on the X-axis as being the type of care provided, organised in accordance with the process of the disease from dementia screening to end of life care. In addition each country was asked to provide an overall description of the care system they offered with regard to the national directives and financing of their dementia care system. The primary source of information was written reports from different sources. Official documents, epidemiological studies and descriptions of the care system, in particular dementia care system offered in their country. In addition interviews with responsible managers, providers or the equivalent in relevant care and service organisations, with persons in consumer/user organisations, with staff, professional employees and purchasers in a municipality or another representative for a civic administrative area were recommended.}},
  author       = {{Rahm Hallberg, Ingalill and Karlsson, Staffan and Lethin, Connie and Melin Emilsson, Ulla}},
  institution  = {{European Commission}},
  keywords     = {{long-term formal professional home care; long-term institutional nursing care systems; inter-sectoral communication}},
  language     = {{eng}},
  number       = {{D2.1}},
  series       = {{Right Time Place Care (RTPC)}},
  title        = {{Structure of long-term home and institutional care systems in Europe}},
  year         = {{2011}},
}