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Partnering to change the world for people with haemophilia : 6th Haemophilia Global Summit, Prague, Czech Republic, 24–26th September 2015

Astermark, Jan LU ; Hart, Dan; Lobet, Sébastien; Blatný, Jan; d'Oiron, Roseline; Kenet, Gili; Dolan, Gerry; Libotte, Valérie and Hermans, Cedric (2016) In European Journal of Haematology 97. p.3-23
Abstract

The 6th Haemophilia Global Summit was held in Prague, Czech Republic, in September 2015. The programme was designed by an independent Scientific Steering Committee of haemophilia experts and aimed to share optimal management strategies for haemophilia at all life stages, explore recent potential advances in the management of haemophilia A and B and discuss challenges in haemophilia care. In this supplement from the meeting, Dan Hart reviews the lessons that can be learnt from cost-constrained environments with regard to improving care for people with haemophilia globally. Sébastien Lobet discusses the importance of physical activity for optimising care and Roseline d'Oiron and Jan Blatný consider the role of real-world data... (More)

The 6th Haemophilia Global Summit was held in Prague, Czech Republic, in September 2015. The programme was designed by an independent Scientific Steering Committee of haemophilia experts and aimed to share optimal management strategies for haemophilia at all life stages, explore recent potential advances in the management of haemophilia A and B and discuss challenges in haemophilia care. In this supplement from the meeting, Dan Hart reviews the lessons that can be learnt from cost-constrained environments with regard to improving care for people with haemophilia globally. Sébastien Lobet discusses the importance of physical activity for optimising care and Roseline d'Oiron and Jan Blatný consider the role of real-world data in understanding the effect of treatment in a clinical setting over the long term and the true impact of treatment on the day-to-day life of the patient. Gili Kenet addresses the current challenges relating to the optimal management of prophylaxis, and Gerry Dolan and Cedric Hermans discuss the value of pharmacokinetic (PK) parameters in informing treatment decisions. Cedric Hermans and Valérie Libotte explore the importance of considering social and occupational development factors as an integral part of haemophilia care, and Jan Astermark reviews key strategies to predict and prevent inhibitor development.

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author
publishing date
type
Contribution to journal
publication status
published
subject
in
European Journal of Haematology
volume
97
pages
21 pages
publisher
Wiley-Blackwell
external identifiers
  • Scopus:84974621066
ISSN
0902-4441
DOI
10.1111/ejh.12761
language
English
LU publication?
no
id
f9ead9a8-7de3-46a3-8319-d21624c97045
date added to LUP
2016-07-08 14:55:17
date last changed
2016-09-20 03:06:53
@misc{f9ead9a8-7de3-46a3-8319-d21624c97045,
  abstract     = {<p>The 6<sup>th</sup> Haemophilia Global Summit was held in Prague, Czech Republic, in September 2015. The programme was designed by an independent Scientific Steering Committee of haemophilia experts and aimed to share optimal management strategies for haemophilia at all life stages, explore recent potential advances in the management of haemophilia A and B and discuss challenges in haemophilia care. In this supplement from the meeting, Dan Hart reviews the lessons that can be learnt from cost-constrained environments with regard to improving care for people with haemophilia globally. Sébastien Lobet discusses the importance of physical activity for optimising care and Roseline d'Oiron and Jan Blatný consider the role of real-world data in understanding the effect of treatment in a clinical setting over the long term and the true impact of treatment on the day-to-day life of the patient. Gili Kenet addresses the current challenges relating to the optimal management of prophylaxis, and Gerry Dolan and Cedric Hermans discuss the value of pharmacokinetic (PK) parameters in informing treatment decisions. Cedric Hermans and Valérie Libotte explore the importance of considering social and occupational development factors as an integral part of haemophilia care, and Jan Astermark reviews key strategies to predict and prevent inhibitor development.</p>},
  author       = {Astermark, Jan and Hart, Dan and Lobet, Sébastien and Blatný, Jan and d'Oiron, Roseline and Kenet, Gili and Dolan, Gerry and Libotte, Valérie and Hermans, Cedric},
  issn         = {0902-4441},
  language     = {eng},
  month        = {07},
  pages        = {3--23},
  publisher    = {ARRAY(0xb262fc8)},
  series       = {European Journal of Haematology},
  title        = {Partnering to change the world for people with haemophilia : 6<sup>th</sup> Haemophilia Global Summit, Prague, Czech Republic, 24–26<sup>th</sup> September 2015},
  url          = {http://dx.doi.org/10.1111/ejh.12761},
  volume       = {97},
  year         = {2016},
}