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Are Treatment Satisfaction, Quality of Life, and Self-assessed Disease Severity Relevant Parameters for Patient Registries? Experiences from Finnish and Swedish Patients with Psoriasis.

Hjortsberg, Catharina ; Bergman, Annika ; Bjarnason, Anton ; Heikkilä, Hannele ; Hjelmgren, Jonas ; Svensson, Åke LU and Tennvall, Gunnel Ragnarson (2011) In Acta Dermato-Venereologica 91. p.409-414
Abstract
Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment... (More)
Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment satisfaction, disease severity and health-related quality of life. The individual disease burden on patients should play a central role in formulating treatment goals. Clinician- and patient-based perspectives of the overall impact of psoriasis can assist clinical decision-making and evaluations of treatments. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Acta Dermato-Venereologica
volume
91
pages
409 - 414
publisher
Medical Journals Limited
external identifiers
  • wos:000292432600005
  • pmid:21461549
  • scopus:79958810124
  • pmid:21461549
ISSN
1651-2057
DOI
10.2340/00015555-1094
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Department of Dermatology and Venerology (013241320)
id
0263c8f0-479c-4146-9a92-fc370756fc94 (old id 1937553)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/21461549?dopt=Abstract
date added to LUP
2016-04-04 09:23:45
date last changed
2020-01-12 20:52:05
@article{0263c8f0-479c-4146-9a92-fc370756fc94,
  abstract     = {Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment satisfaction, disease severity and health-related quality of life. The individual disease burden on patients should play a central role in formulating treatment goals. Clinician- and patient-based perspectives of the overall impact of psoriasis can assist clinical decision-making and evaluations of treatments.},
  author       = {Hjortsberg, Catharina and Bergman, Annika and Bjarnason, Anton and Heikkilä, Hannele and Hjelmgren, Jonas and Svensson, Åke and Tennvall, Gunnel Ragnarson},
  issn         = {1651-2057},
  language     = {eng},
  pages        = {409--414},
  publisher    = {Medical Journals Limited},
  series       = {Acta Dermato-Venereologica},
  title        = {Are Treatment Satisfaction, Quality of Life, and Self-assessed Disease Severity Relevant Parameters for Patient Registries? Experiences from Finnish and Swedish Patients with Psoriasis.},
  url          = {http://dx.doi.org/10.2340/00015555-1094},
  doi          = {10.2340/00015555-1094},
  volume       = {91},
  year         = {2011},
}