Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy
(2020) In Nursing Open 7(4). p.1157-1163- Abstract
Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far... (More)
Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.
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- author
- Möllerberg, Marie Louise ; Langegård, Ulrica ; Ohlsson-Nevo, Emma ; Fransson, Per ; Johansson, Birgitta ; Ahlberg, Karin and Sjövall, Katarina LU
- organization
- publishing date
- 2020-07
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- brain tumour, interviews, nursing, proton beam therapy, psychological adaptation, qualitative method, radiotherapy, social context, social support, staying away from home
- in
- Nursing Open
- volume
- 7
- issue
- 4
- pages
- 7 pages
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:32587735
- scopus:85083423126
- ISSN
- 2054-1058
- DOI
- 10.1002/nop2.490
- language
- English
- LU publication?
- yes
- id
- 0949b12f-5fb8-4542-bbfc-9673be706fa3
- date added to LUP
- 2020-05-07 17:31:56
- date last changed
- 2024-08-21 20:26:22
@article{0949b12f-5fb8-4542-bbfc-9673be706fa3, abstract = {{<p>Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.</p>}}, author = {{Möllerberg, Marie Louise and Langegård, Ulrica and Ohlsson-Nevo, Emma and Fransson, Per and Johansson, Birgitta and Ahlberg, Karin and Sjövall, Katarina}}, issn = {{2054-1058}}, keywords = {{brain tumour; interviews; nursing; proton beam therapy; psychological adaptation; qualitative method; radiotherapy; social context; social support; staying away from home}}, language = {{eng}}, number = {{4}}, pages = {{1157--1163}}, publisher = {{Wiley-Blackwell}}, series = {{Nursing Open}}, title = {{Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy}}, url = {{http://dx.doi.org/10.1002/nop2.490}}, doi = {{10.1002/nop2.490}}, volume = {{7}}, year = {{2020}}, }