Advanced

Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy

Möllerberg, Marie Louise ; Langegård, Ulrica ; Ohlsson-Nevo, Emma ; Fransson, Per ; Johansson, Birgitta ; Ahlberg, Karin and Sjövall, Katarina LU (2020) In Nursing Open
Abstract

Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far... (More)

Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
brain tumour, interviews, nursing, proton beam therapy, psychological adaptation, qualitative method, radiotherapy, social context, social support, staying away from home
in
Nursing Open
publisher
Wiley-Blackwell
external identifiers
  • pmid:32587735
  • scopus:85083423126
ISSN
2054-1058
DOI
10.1002/nop2.490
language
English
LU publication?
yes
id
0949b12f-5fb8-4542-bbfc-9673be706fa3
date added to LUP
2020-05-07 17:31:56
date last changed
2020-11-24 03:46:39
@article{0949b12f-5fb8-4542-bbfc-9673be706fa3,
  abstract     = {<p>Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.</p>},
  author       = {Möllerberg, Marie Louise and Langegård, Ulrica and Ohlsson-Nevo, Emma and Fransson, Per and Johansson, Birgitta and Ahlberg, Karin and Sjövall, Katarina},
  issn         = {2054-1058},
  language     = {eng},
  month        = {04},
  publisher    = {Wiley-Blackwell},
  series       = {Nursing Open},
  title        = {Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy},
  url          = {http://dx.doi.org/10.1002/nop2.490},
  doi          = {10.1002/nop2.490},
  year         = {2020},
}