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The National Spina Bifida Program transition initiative : the people, the plan, and the process

Thibadeau, Judy K. ; Alriksson-Schmidt, Ann LU and Zabel, TA (2010) In Pediatric Clinics of North America 57(4). p.903-910
Abstract

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

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author
; and
publishing date
type
Contribution to journal
publication status
published
keywords
Comprehensive Health Care/organization & administration, Continuity of Patient Care/organization & administration, Humans, Models, Organizational, Program Evaluation/methods, Quality of Health Care, Spinal Dysraphism/therapy, Systems Integration
in
Pediatric Clinics of North America
volume
57
issue
4
pages
8 pages
publisher
W.B. Saunders
external identifiers
  • scopus:77957146044
  • pmid:20883880
ISSN
0031-3955
DOI
10.1016/j.pcl.2010.07.010
language
English
LU publication?
no
id
0985c679-1106-4a1c-ad86-86cb4b42c0e8
date added to LUP
2016-11-22 12:51:04
date last changed
2024-03-22 12:04:57
@article{0985c679-1106-4a1c-ad86-86cb4b42c0e8,
  abstract     = {{<p>This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.</p>}},
  author       = {{Thibadeau, Judy K. and Alriksson-Schmidt, Ann and Zabel, TA}},
  issn         = {{0031-3955}},
  keywords     = {{Comprehensive Health Care/organization & administration; Continuity of Patient Care/organization & administration; Humans; Models, Organizational; Program Evaluation/methods; Quality of Health Care; Spinal Dysraphism/therapy; Systems Integration}},
  language     = {{eng}},
  number       = {{4}},
  pages        = {{903--910}},
  publisher    = {{W.B. Saunders}},
  series       = {{Pediatric Clinics of North America}},
  title        = {{The National Spina Bifida Program transition initiative : the people, the plan, and the process}},
  url          = {{http://dx.doi.org/10.1016/j.pcl.2010.07.010}},
  doi          = {{10.1016/j.pcl.2010.07.010}},
  volume       = {{57}},
  year         = {{2010}},
}