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Validation of the Swedish Knee Arthroplasty Register: a postal survey regarding 30,376 knees operated on between 1975 and 1995

Robertsson, Otto LU ; Dunbar, Michael LU ; Knutson, Kaj LU ; Lewold, Stefan LU and Lidgren, Lars LU (1999) In Acta Orthopaedica Scandinavica 70(5). p.467-472
Abstract
The Swedish Knee Arthroplasty Register is dependent on the participating clinics regarding accuracy of information. As the register is prospective, and since revision is used as the endpoint in survival analyses, it is important that all revisions of registered primary arthroplasties are reported. To validate the register, we sent a questionnaire to all living patients with 30,796 knees registered as having been operated on from 1975-1995. Of living patients, 99% could be located and 93% answered. We found that one fifth of the revisions had not been reported and that relatively fewer revisions were lost to follow-up during the first decade of the register than in the following years. To investigate whether the Patient Administrative... (More)
The Swedish Knee Arthroplasty Register is dependent on the participating clinics regarding accuracy of information. As the register is prospective, and since revision is used as the endpoint in survival analyses, it is important that all revisions of registered primary arthroplasties are reported. To validate the register, we sent a questionnaire to all living patients with 30,796 knees registered as having been operated on from 1975-1995. Of living patients, 99% could be located and 93% answered. We found that one fifth of the revisions had not been reported and that relatively fewer revisions were lost to follow-up during the first decade of the register than in the following years. To investigate whether the Patient Administrative System (PAS), a database based on ICD coding and run by the Swedish health authorities, could be used to locate missing revisions found by the postal survey, we compared this database with the Swedish Knee Arthroplasty Register. 84% of the missing revisions revealed by the postal survey were found by using this method. Hence after the survey and the use of the PAS to find unreported revisions in deceased and non-responding patients, we estimate that 94% of all revisions are accounted for. Apart from a generally higher cumulative revision rate, conclusions reported from the Register in recent years regarding survivorship seem to be unaffected by the underreporting. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Acta Orthopaedica Scandinavica
volume
70
issue
5
pages
467 - 472
publisher
Taylor & Francis
external identifiers
  • pmid:10622479
  • scopus:0032759635
ISSN
0001-6470
DOI
10.3109/17453679909000982
language
English
LU publication?
yes
id
2a1c077a-7590-4e45-b4c8-5689dfd0ff4c (old id 1114872)
date added to LUP
2008-07-07 09:38:27
date last changed
2017-06-18 04:29:26
@article{2a1c077a-7590-4e45-b4c8-5689dfd0ff4c,
  abstract     = {The Swedish Knee Arthroplasty Register is dependent on the participating clinics regarding accuracy of information. As the register is prospective, and since revision is used as the endpoint in survival analyses, it is important that all revisions of registered primary arthroplasties are reported. To validate the register, we sent a questionnaire to all living patients with 30,796 knees registered as having been operated on from 1975-1995. Of living patients, 99% could be located and 93% answered. We found that one fifth of the revisions had not been reported and that relatively fewer revisions were lost to follow-up during the first decade of the register than in the following years. To investigate whether the Patient Administrative System (PAS), a database based on ICD coding and run by the Swedish health authorities, could be used to locate missing revisions found by the postal survey, we compared this database with the Swedish Knee Arthroplasty Register. 84% of the missing revisions revealed by the postal survey were found by using this method. Hence after the survey and the use of the PAS to find unreported revisions in deceased and non-responding patients, we estimate that 94% of all revisions are accounted for. Apart from a generally higher cumulative revision rate, conclusions reported from the Register in recent years regarding survivorship seem to be unaffected by the underreporting.},
  author       = {Robertsson, Otto and Dunbar, Michael and Knutson, Kaj and Lewold, Stefan and Lidgren, Lars},
  issn         = {0001-6470},
  language     = {eng},
  number       = {5},
  pages        = {467--472},
  publisher    = {Taylor & Francis},
  series       = {Acta Orthopaedica Scandinavica},
  title        = {Validation of the Swedish Knee Arthroplasty Register: a postal survey regarding 30,376 knees operated on between 1975 and 1995},
  url          = {http://dx.doi.org/10.3109/17453679909000982},
  volume       = {70},
  year         = {1999},
}