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The meaning of living with traumatic brain injury in people with moderate or severe traumatic brain injury

Jumisko, Eija; Lexell, Jan LU and Soderberg, Siv (2005) In Journal of Neuroscience Nursing 37(1). p.42-50
Abstract
A traumatic brain injury (TBI) extensively affects the injured person's daily life. Research based on the perspectives of people with TBI can increase understanding of the challenges they face and the possibility of supporting them in managing their lives. The aim of this study was to elucidate the meaning of living with TBI as narrated by the people with moderate or severe TBI. The data were collected by means of qualitative research interviews with 12 participants who had lived with TBI for 4-13 years. A phenomenological hermeneutic method was used to interpret the transcribed interviews. The study showed that people with TBI had lost their way and struggled to achieve a new normalcy. Losing one's way included experiences of waking up to... (More)
A traumatic brain injury (TBI) extensively affects the injured person's daily life. Research based on the perspectives of people with TBI can increase understanding of the challenges they face and the possibility of supporting them in managing their lives. The aim of this study was to elucidate the meaning of living with TBI as narrated by the people with moderate or severe TBI. The data were collected by means of qualitative research interviews with 12 participants who had lived with TBI for 4-13 years. A phenomenological hermeneutic method was used to interpret the transcribed interviews. The study showed that people with TBI had lost their way and struggled to achieve a new normalcy. Losing one's way included experiences of waking up to unknown, missing relationships and experiencing the body as an enemy. Participants' struggles to attain a new normalcy included searching for an explanation, recovering the self, wishing to be met with respect, and finding a new way of living. Living with TBI seems to mean living with a perpetually altered body that changed the whole life and caused deep suffering, where feelings of shame and dignity competed with each other. Participants seem to be quite alone in their suffering and need more support from healthcare professionals. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Journal of Neuroscience Nursing
volume
37
issue
1
pages
42 - 50
publisher
American Association of Neuroscience Nurses
external identifiers
  • pmid:15794444
  • scopus:17844374847
ISSN
0888-0395
language
English
LU publication?
yes
id
60ed8928-bddd-4d5c-9133-537858ad361b (old id 1133626)
date added to LUP
2008-06-17 14:57:16
date last changed
2017-09-17 04:48:17
@article{60ed8928-bddd-4d5c-9133-537858ad361b,
  abstract     = {A traumatic brain injury (TBI) extensively affects the injured person's daily life. Research based on the perspectives of people with TBI can increase understanding of the challenges they face and the possibility of supporting them in managing their lives. The aim of this study was to elucidate the meaning of living with TBI as narrated by the people with moderate or severe TBI. The data were collected by means of qualitative research interviews with 12 participants who had lived with TBI for 4-13 years. A phenomenological hermeneutic method was used to interpret the transcribed interviews. The study showed that people with TBI had lost their way and struggled to achieve a new normalcy. Losing one's way included experiences of waking up to unknown, missing relationships and experiencing the body as an enemy. Participants' struggles to attain a new normalcy included searching for an explanation, recovering the self, wishing to be met with respect, and finding a new way of living. Living with TBI seems to mean living with a perpetually altered body that changed the whole life and caused deep suffering, where feelings of shame and dignity competed with each other. Participants seem to be quite alone in their suffering and need more support from healthcare professionals.},
  author       = {Jumisko, Eija and Lexell, Jan and Soderberg, Siv},
  issn         = {0888-0395},
  language     = {eng},
  number       = {1},
  pages        = {42--50},
  publisher    = {American Association of Neuroscience Nurses},
  series       = {Journal of Neuroscience Nursing},
  title        = {The meaning of living with traumatic brain injury in people with moderate or severe traumatic brain injury},
  volume       = {37},
  year         = {2005},
}