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Occupational balance among family members of people in palliative care

Nissmark, Sofia and Malmgren Fänge, Agneta LU (2018) In Scandinavian Journal of Occupational Therapy
Abstract

Background: Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. Objective: To explore occupational balance, needs and roles among family members to persons in palliative care. Methods: Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. Result: An overarching theme Striving for control while being in the disease, and two categories Changing roles and... (More)

Background: Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. Objective: To explore occupational balance, needs and roles among family members to persons in palliative care. Methods: Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. Result: An overarching theme Striving for control while being in the disease, and two categories Changing roles and occupations in the family; and Handling emotions in the end of life emerged from the data. Conclusion: The findings suggest that family members could benefit from strategies to maintain valued roles and occupations, and that palliative care provision need to develop new ways to take family members needs into consideration.

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Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
activity, cancer, content analysis, family caregiver, qualitative interviews, Relative
in
Scandinavian Journal of Occupational Therapy
pages
7 pages
publisher
Taylor & Francis
external identifiers
  • scopus:85049882971
ISSN
1103-8128
DOI
10.1080/11038128.2018.1483421
language
English
LU publication?
yes
id
1188b404-5e75-4e3e-b9a7-e7fe984b51d6
date added to LUP
2018-08-02 08:51:17
date last changed
2019-02-20 11:23:32
@article{1188b404-5e75-4e3e-b9a7-e7fe984b51d6,
  abstract     = {<p>Background: Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. Objective: To explore occupational balance, needs and roles among family members to persons in palliative care. Methods: Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. Result: An overarching theme Striving for control while being in the disease, and two categories Changing roles and occupations in the family; and Handling emotions in the end of life emerged from the data. Conclusion: The findings suggest that family members could benefit from strategies to maintain valued roles and occupations, and that palliative care provision need to develop new ways to take family members needs into consideration.</p>},
  author       = {Nissmark, Sofia and Malmgren Fänge, Agneta},
  issn         = {1103-8128},
  keyword      = {activity,cancer,content analysis,family caregiver,qualitative interviews,Relative},
  language     = {eng},
  pages        = {7},
  publisher    = {Taylor & Francis},
  series       = {Scandinavian Journal of Occupational Therapy},
  title        = {Occupational balance among family members of people in palliative care},
  url          = {http://dx.doi.org/10.1080/11038128.2018.1483421},
  year         = {2018},
}