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The meaning of women's experiences of living with multiple sclerosis

Olsson, Malin; Lexell, Jan LU and Soderberg, Siv (2008) In Health Care for Women International 29(4). p.416-430
Abstract
We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of... (More)
We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of being met in a different way, which can be understood as an expression of a violated dignity. At the same time, the women with MS struggle to protect their dignity. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Health Care for Women International
volume
29
issue
4
pages
416 - 430
publisher
Taylor & Francis
external identifiers
  • wos:000255155100007
  • scopus:41849096679
ISSN
1096-4665
DOI
10.1080/07399330701876646
language
English
LU publication?
yes
id
6519c862-6594-4794-9cd0-49b166786cc6 (old id 1205544)
date added to LUP
2008-09-19 11:22:28
date last changed
2017-09-03 03:48:55
@article{6519c862-6594-4794-9cd0-49b166786cc6,
  abstract     = {We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of being met in a different way, which can be understood as an expression of a violated dignity. At the same time, the women with MS struggle to protect their dignity.},
  author       = {Olsson, Malin and Lexell, Jan and Soderberg, Siv},
  issn         = {1096-4665},
  language     = {eng},
  number       = {4},
  pages        = {416--430},
  publisher    = {Taylor & Francis},
  series       = {Health Care for Women International},
  title        = {The meaning of women's experiences of living with multiple sclerosis},
  url          = {http://dx.doi.org/10.1080/07399330701876646},
  volume       = {29},
  year         = {2008},
}