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Motives for becoming and remaining member of patient associations: a study of 1,810 Swedish individuals with cancer associations.

Carlsson, Christina LU ; Baigi, Amir; Killander, Dick LU and Sätterlund Larsson, Ullabeth (2005) In Supportive Care in Cancer 13(12). p.1035-1043
Abstract
Patient associations for cancer patients (PACPs) are increasing in number as well as in the number of members. We utilised a questionnaire to investigate how members of 13 PACPs motivated their memberships. The study included 1,810 individuals who had been treated for breast cancer, gynaecological cancer, or prostate cancer. Through questionnaires these individuals were asked to articulate why they became and chose to remain members. Descriptive statistics and content analyses were used to analyse the open and structured questions. Motives for membership reflected both benefits for the individuals and the welfare of others; themes such as 'needs related to having cancer' (reported by 33% as motives for becoming members; 14% for remaining... (More)
Patient associations for cancer patients (PACPs) are increasing in number as well as in the number of members. We utilised a questionnaire to investigate how members of 13 PACPs motivated their memberships. The study included 1,810 individuals who had been treated for breast cancer, gynaecological cancer, or prostate cancer. Through questionnaires these individuals were asked to articulate why they became and chose to remain members. Descriptive statistics and content analyses were used to analyse the open and structured questions. Motives for membership reflected both benefits for the individuals and the welfare of others; themes such as 'needs related to having cancer' (reported by 33% as motives for becoming members; 14% for remaining members), 'wanted to use the PACP's information and activities' (24%; 38%) and 'wanted to support the PACP and its possibilities to have an impact' (9%; 20%) were dominant. The theme 'needs and experiences related to having cancer' was more common among members with breast cancer (38%) and ovarian cancer (36%) than among members with prostate cancer (25%), whereas 53% of men with prostate cancer reported 'wanted to use the PACP's information and activities' compared to 19-9% among female members. The motives showed that needs related to having cancer and that activities and information offered by the PACPs were important to the members, as were their beliefs that the PACP prompted issues that were important to the members. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
cancer, patient associations for cancer patients, membership, motives
in
Supportive Care in Cancer
volume
13
issue
12
pages
1035 - 1043
publisher
Springer
external identifiers
  • pmid:15660225
  • wos:000233349300011
  • scopus:27744554578
ISSN
0941-4355
DOI
10.1007/s00520-004-0735-x
language
English
LU publication?
yes
id
f8823622-2e5c-425e-8f57-6bcaff5a62ea (old id 133034)
alternative location
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=15660225&dopt=Abstract
date added to LUP
2007-07-18 15:48:35
date last changed
2017-01-01 07:28:16
@article{f8823622-2e5c-425e-8f57-6bcaff5a62ea,
  abstract     = {Patient associations for cancer patients (PACPs) are increasing in number as well as in the number of members. We utilised a questionnaire to investigate how members of 13 PACPs motivated their memberships. The study included 1,810 individuals who had been treated for breast cancer, gynaecological cancer, or prostate cancer. Through questionnaires these individuals were asked to articulate why they became and chose to remain members. Descriptive statistics and content analyses were used to analyse the open and structured questions. Motives for membership reflected both benefits for the individuals and the welfare of others; themes such as 'needs related to having cancer' (reported by 33% as motives for becoming members; 14% for remaining members), 'wanted to use the PACP's information and activities' (24%; 38%) and 'wanted to support the PACP and its possibilities to have an impact' (9%; 20%) were dominant. The theme 'needs and experiences related to having cancer' was more common among members with breast cancer (38%) and ovarian cancer (36%) than among members with prostate cancer (25%), whereas 53% of men with prostate cancer reported 'wanted to use the PACP's information and activities' compared to 19-9% among female members. The motives showed that needs related to having cancer and that activities and information offered by the PACPs were important to the members, as were their beliefs that the PACP prompted issues that were important to the members.},
  author       = {Carlsson, Christina and Baigi, Amir and Killander, Dick and Sätterlund Larsson, Ullabeth},
  issn         = {0941-4355},
  keyword      = {cancer,patient associations for cancer patients,membership,motives},
  language     = {eng},
  number       = {12},
  pages        = {1035--1043},
  publisher    = {Springer},
  series       = {Supportive Care in Cancer},
  title        = {Motives for becoming and remaining member of patient associations: a study of 1,810 Swedish individuals with cancer associations.},
  url          = {http://dx.doi.org/10.1007/s00520-004-0735-x},
  volume       = {13},
  year         = {2005},
}