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Constantly Changing Lives: Experiences of People With Multiple Sclerosis

Månsson Lexell, Eva LU orcid ; Lund, Maria Larsson and Iwarsson, Susanne LU (2009) In American Journal of Occupational Therapy 63(6). p.772-781
Abstract
The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory, The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant... (More)
The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory, The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity. (Less)
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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
social environment, multiple sclerosis, life change events, human activities, identification (psychology)
in
American Journal of Occupational Therapy
volume
63
issue
6
pages
772 - 781
publisher
American Occupational Therapy Association
external identifiers
  • wos:000272729500012
  • scopus:75449099604
ISSN
0272-9490
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Division of Occupational Therapy (Closed 2012) (013025000)
id
1f8fc4d1-a317-44b8-8853-dcfc1495b4f0 (old id 1532639)
date added to LUP
2016-04-01 11:58:21
date last changed
2023-11-11 07:42:12
@article{1f8fc4d1-a317-44b8-8853-dcfc1495b4f0,
  abstract     = {{The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory, The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity.}},
  author       = {{Månsson Lexell, Eva and Lund, Maria Larsson and Iwarsson, Susanne}},
  issn         = {{0272-9490}},
  keywords     = {{social environment; multiple sclerosis; life change events; human activities; identification (psychology)}},
  language     = {{eng}},
  number       = {{6}},
  pages        = {{772--781}},
  publisher    = {{American Occupational Therapy Association}},
  series       = {{American Journal of Occupational Therapy}},
  title        = {{Constantly Changing Lives: Experiences of People With Multiple Sclerosis}},
  volume       = {{63}},
  year         = {{2009}},
}