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Health-related quality of life in Swedish children and adolescents with limb reduction deficiency

Ylimainen, K.; Nachemson, A.; Somerstein, K LU ; Stockselius, A. and Hermansson, L. Norling (2010) In Acta Pædiatrica 99(10). p.1550-1555
Abstract
Aim: To investigate health-related quality of life (HRQoL) in young persons with limb reduction deficiency (LRD). Methods: One hundred and forty children with LRD aged 8-16 answered the DISABKIDS questionnaire for children with chronic health conditions. Of their parents, 137 answered a corresponding questionnaire concerning their child. Results: Compared to reference data from children with other health conditions, children with LRD showed higher overall HRQoL and higher HRQoL in all subscales except social exclusion. Overall, the results were not related to gender or age, but girls with longitudinal, bilateral or lower LRD reported significantly lower HRQoL in most subscales than girls with other forms of LRD. Unexpected attention and... (More)
Aim: To investigate health-related quality of life (HRQoL) in young persons with limb reduction deficiency (LRD). Methods: One hundred and forty children with LRD aged 8-16 answered the DISABKIDS questionnaire for children with chronic health conditions. Of their parents, 137 answered a corresponding questionnaire concerning their child. Results: Compared to reference data from children with other health conditions, children with LRD showed higher overall HRQoL and higher HRQoL in all subscales except social exclusion. Overall, the results were not related to gender or age, but girls with longitudinal, bilateral or lower LRD reported significantly lower HRQoL in most subscales than girls with other forms of LRD. Unexpected attention and perceived physical appearance had a significant impact on HRQoL. There was poor agreement between parent and child report of the child's HRQoL. Conclusion: Children and adolescents with limb reduction deficiency have a better HRQoL than children with other health conditions but there are subgroups of children who experience a significantly lower HRQoL than their peers. The difference between parent and child ratings should be considered in clinical practice. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Health-related quality of life, Children, Congenital limb deficiency, Parent assessment
in
Acta Pædiatrica
volume
99
issue
10
pages
1550 - 1555
publisher
Wiley-Blackwell Publishing Ltd
external identifiers
  • wos:000281556700026
  • scopus:77956361144
ISSN
1651-2227
DOI
10.1111/j.1651-2227.2010.01855.x
language
English
LU publication?
yes
id
00ad92d3-54a4-4e25-832f-59b45a231edf (old id 1697898)
date added to LUP
2010-10-22 11:39:07
date last changed
2018-05-29 11:00:57
@article{00ad92d3-54a4-4e25-832f-59b45a231edf,
  abstract     = {Aim: To investigate health-related quality of life (HRQoL) in young persons with limb reduction deficiency (LRD). Methods: One hundred and forty children with LRD aged 8-16 answered the DISABKIDS questionnaire for children with chronic health conditions. Of their parents, 137 answered a corresponding questionnaire concerning their child. Results: Compared to reference data from children with other health conditions, children with LRD showed higher overall HRQoL and higher HRQoL in all subscales except social exclusion. Overall, the results were not related to gender or age, but girls with longitudinal, bilateral or lower LRD reported significantly lower HRQoL in most subscales than girls with other forms of LRD. Unexpected attention and perceived physical appearance had a significant impact on HRQoL. There was poor agreement between parent and child report of the child's HRQoL. Conclusion: Children and adolescents with limb reduction deficiency have a better HRQoL than children with other health conditions but there are subgroups of children who experience a significantly lower HRQoL than their peers. The difference between parent and child ratings should be considered in clinical practice.},
  author       = {Ylimainen, K. and Nachemson, A. and Somerstein, K and Stockselius, A. and Hermansson, L. Norling},
  issn         = {1651-2227},
  keyword      = {Health-related quality of life,Children,Congenital limb deficiency,Parent assessment},
  language     = {eng},
  number       = {10},
  pages        = {1550--1555},
  publisher    = {Wiley-Blackwell Publishing Ltd},
  series       = {Acta Pædiatrica},
  title        = {Health-related quality of life in Swedish children and adolescents with limb reduction deficiency},
  url          = {http://dx.doi.org/10.1111/j.1651-2227.2010.01855.x},
  volume       = {99},
  year         = {2010},
}