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A Spider in the Web: Role of the Palliative Care Nurse Specialist in Uganda--An Ethnographic Field Study.

Schaepe, Christiane ; Bolmsjö, Ingrid LU and Campbell, Ann-Mari (2011) In The American Journal of Hospice and Palliative Medicine 28(6). p.403-411
Abstract
Background: Palliative care is not a priority in developing countries. Hospice Africa Uganda (HAU), where nurses complete a course in clinical palliative care, is considered a model for other African countries. Aim: To explore the role of the palliative care nurse specialist (PCNS) in Uganda. METHODS: This ethnographic field study uses observations, interviews, and group interviews. Participants: In total, 20 participants are included in this study. Result: The role of the palliative care nurse specialist is multifaceted. Beyond prescribing drugs, their role is to deliver holistic care. They encounter numerous challenges in their work, but they also have the possibility to improve the quality of the patient's life.
Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
holistic care, challenges, Hospice Africa Uganda, nurses' role, palliative care, Uganda
in
The American Journal of Hospice and Palliative Medicine
volume
28
issue
6
pages
403 - 411
publisher
SAGE Publications
external identifiers
  • wos:000295991700004
  • pmid:21317130
  • scopus:80054693049
  • pmid:21317130
ISSN
1938-2715
DOI
10.1177/1049909110397727
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Caring Sciences (Closed 2012) (016514020)
id
e6822500-c394-4c4d-a0a1-a53f36267744 (old id 1831884)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/21317130?dopt=Abstract
date added to LUP
2016-04-01 14:28:04
date last changed
2021-03-09 03:50:36
@article{e6822500-c394-4c4d-a0a1-a53f36267744,
  abstract     = {Background: Palliative care is not a priority in developing countries. Hospice Africa Uganda (HAU), where nurses complete a course in clinical palliative care, is considered a model for other African countries. Aim: To explore the role of the palliative care nurse specialist (PCNS) in Uganda. METHODS: This ethnographic field study uses observations, interviews, and group interviews. Participants: In total, 20 participants are included in this study. Result: The role of the palliative care nurse specialist is multifaceted. Beyond prescribing drugs, their role is to deliver holistic care. They encounter numerous challenges in their work, but they also have the possibility to improve the quality of the patient's life.},
  author       = {Schaepe, Christiane and Bolmsjö, Ingrid and Campbell, Ann-Mari},
  issn         = {1938-2715},
  language     = {eng},
  number       = {6},
  pages        = {403--411},
  publisher    = {SAGE Publications},
  series       = {The American Journal of Hospice and Palliative Medicine},
  title        = {A Spider in the Web: Role of the Palliative Care Nurse Specialist in Uganda--An Ethnographic Field Study.},
  url          = {http://dx.doi.org/10.1177/1049909110397727},
  doi          = {10.1177/1049909110397727},
  volume       = {28},
  year         = {2011},
}