Being between life and death—experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care
(2024) In International Journal of Qualitative Studies on Health and Well-being 19(1).- Abstract
Purpose: This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge. Methods: This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis. Findings: The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with... (More)
Purpose: This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge. Methods: This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis. Findings: The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with staff that were stressed; however, the efforts of the staff during this strenuous circumstance were still positively acknowledged. Difficulties to stay in touch with family and friends due to visiting restrictions affected the patient’s psychosocial wellbeing. Conclusion: Contracting COVID-19 in the beginning of the pandemic was a stressful event. Being seen and heard is of importance as it has the possibility to create a feeling of security and being cared for despite unclarities about treatment and illness trajectory. Accordingly, healthcare staff play an important role for the psychosocial wellbeing of patients treated for COVID-19.
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- author
- Lundberg, Tina ; Falk, Eleonora ; Alvariza, Anette ; Åkerman, Eva LU ; Dahl, Oili ; Nilsson, Marie and Anmyr, Lena
- organization
- publishing date
- 2024
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- COVID-19, intensive care, patients, psychosocial support, psychosocial wellbeing
- in
- International Journal of Qualitative Studies on Health and Well-being
- volume
- 19
- issue
- 1
- article number
- 2398223
- publisher
- Taylor & Francis
- external identifiers
-
- pmid:39238148
- scopus:85203420001
- ISSN
- 1748-2623
- DOI
- 10.1080/17482631.2024.2398223
- language
- English
- LU publication?
- yes
- additional info
- Publisher Copyright: © 2024 Karolinska University hospital. Published by Informa UK Limited, trading as Taylor & Francis Group.
- id
- 19299013-84b2-4942-bb83-a94980a2fff5
- date added to LUP
- 2024-12-03 14:55:29
- date last changed
- 2025-07-16 09:11:06
@article{19299013-84b2-4942-bb83-a94980a2fff5,
abstract = {{<p>Purpose: This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge. Methods: This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis. Findings: The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with staff that were stressed; however, the efforts of the staff during this strenuous circumstance were still positively acknowledged. Difficulties to stay in touch with family and friends due to visiting restrictions affected the patient’s psychosocial wellbeing. Conclusion: Contracting COVID-19 in the beginning of the pandemic was a stressful event. Being seen and heard is of importance as it has the possibility to create a feeling of security and being cared for despite unclarities about treatment and illness trajectory. Accordingly, healthcare staff play an important role for the psychosocial wellbeing of patients treated for COVID-19.</p>}},
author = {{Lundberg, Tina and Falk, Eleonora and Alvariza, Anette and Åkerman, Eva and Dahl, Oili and Nilsson, Marie and Anmyr, Lena}},
issn = {{1748-2623}},
keywords = {{COVID-19; intensive care; patients; psychosocial support; psychosocial wellbeing}},
language = {{eng}},
number = {{1}},
publisher = {{Taylor & Francis}},
series = {{International Journal of Qualitative Studies on Health and Well-being}},
title = {{Being between life and death—experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care}},
url = {{http://dx.doi.org/10.1080/17482631.2024.2398223}},
doi = {{10.1080/17482631.2024.2398223}},
volume = {{19}},
year = {{2024}},
}