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Validation of a Self-Concept Scale for Lynch Syndrome in Different Nationalities

Vendel Petersen, Helle LU ; Bartuma, Katarina LU ; Bendahl, Pär-Ola LU ; Wong, Jiahui; Carlsson, Christina LU ; Bernstein, Inge; Esplen, Mary Jane and Nilbert, Mef LU (2011) In Journal of Genetic Counseling 20(3). p.308-313
Abstract
Learning about hereditary cancer may influence an individual's self-concept, which otherwise represents a complex but stable cognitive structure. Recently, a 20-statement self-concept scale, with subscales related to stigma-vulnerability and bowel symptom-related anxiety, was developed for Lynch syndrome. We compared the performance of this scale in 591 mutation carriers from Denmark, Sweden and Canada. Principal component analysis identified two sets of linked statements-the first related to feeling different, isolated and labeled, and the second to concern and worry about bowel changes. The scale performed consistently in the three countries. Minor differences were identified, with guilt about passing on a defective gene and feelings of... (More)
Learning about hereditary cancer may influence an individual's self-concept, which otherwise represents a complex but stable cognitive structure. Recently, a 20-statement self-concept scale, with subscales related to stigma-vulnerability and bowel symptom-related anxiety, was developed for Lynch syndrome. We compared the performance of this scale in 591 mutation carriers from Denmark, Sweden and Canada. Principal component analysis identified two sets of linked statements-the first related to feeling different, isolated and labeled, and the second to concern and worry about bowel changes. The scale performed consistently in the three countries. Minor differences were identified, with guilt about passing on a defective gene and feelings of losing one's privacy being more pronounced among Canadians, whereas Danes more often expressed worries about cancer. Validation of the Lynch syndrome self-concept scale supports its basic structure, identifies dependence between the statements in the subscales and demonstrates its applicability in different Western populations. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
HNPCC, Hereditary nonpolyposis colorectal cancer, Psychological impact, Reliability, Questionnaire, Validity
in
Journal of Genetic Counseling
volume
20
issue
3
pages
308 - 313
publisher
Springer
external identifiers
  • wos:000290454500008
  • scopus:79958770668
ISSN
1059-7700
DOI
10.1007/s10897-011-9349-x
language
English
LU publication?
yes
id
3106d667-fa06-49f0-ba29-28fe32275338 (old id 1986849)
date added to LUP
2011-07-01 09:20:55
date last changed
2017-05-28 03:25:59
@article{3106d667-fa06-49f0-ba29-28fe32275338,
  abstract     = {Learning about hereditary cancer may influence an individual's self-concept, which otherwise represents a complex but stable cognitive structure. Recently, a 20-statement self-concept scale, with subscales related to stigma-vulnerability and bowel symptom-related anxiety, was developed for Lynch syndrome. We compared the performance of this scale in 591 mutation carriers from Denmark, Sweden and Canada. Principal component analysis identified two sets of linked statements-the first related to feeling different, isolated and labeled, and the second to concern and worry about bowel changes. The scale performed consistently in the three countries. Minor differences were identified, with guilt about passing on a defective gene and feelings of losing one's privacy being more pronounced among Canadians, whereas Danes more often expressed worries about cancer. Validation of the Lynch syndrome self-concept scale supports its basic structure, identifies dependence between the statements in the subscales and demonstrates its applicability in different Western populations.},
  author       = {Vendel Petersen, Helle and Bartuma, Katarina and Bendahl, Pär-Ola and Wong, Jiahui and Carlsson, Christina and Bernstein, Inge and Esplen, Mary Jane and Nilbert, Mef},
  issn         = {1059-7700},
  keyword      = {HNPCC,Hereditary nonpolyposis colorectal cancer,Psychological impact,Reliability,Questionnaire,Validity},
  language     = {eng},
  number       = {3},
  pages        = {308--313},
  publisher    = {Springer},
  series       = {Journal of Genetic Counseling},
  title        = {Validation of a Self-Concept Scale for Lynch Syndrome in Different Nationalities},
  url          = {http://dx.doi.org/10.1007/s10897-011-9349-x},
  volume       = {20},
  year         = {2011},
}