Democratic expert influence through bioethical advisory commissions? The case of Sweden
(2010)- Abstract
- Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.
• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.
• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.
• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific... (More) - Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.
• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.
• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.
• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific experts, but the connection with public opinion was more or less absent.
• Had the advisory committee worked more openly and allowed a multiplicity of perspectives being heard, the democratic and quality aspects in this legislation process would have been strengthened. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/2276802
- author
- Hedlund, Maria LU
- organization
- publishing date
- 2010
- type
- Chapter in Book/Report/Conference proceeding
- publication status
- published
- subject
- keywords
- expertise, democracy, bioethics, PGD, Sweden
- host publication
- Quality Issues in Clinical Genetic Services
- editor
- Kristoffersson, Ulf ; Cassiman, J. J. and Schmidtke, Jörg
- publisher
- Springer
- ISBN
- 978-90-481-3918-7
- language
- English
- LU publication?
- yes
- id
- 401cd6fe-f894-4a33-a406-9322a7fe011a (old id 2276802)
- date added to LUP
- 2016-04-04 11:59:42
- date last changed
- 2018-11-21 21:08:24
@inbook{401cd6fe-f894-4a33-a406-9322a7fe011a,
abstract = {{Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.<br/><br>
• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.<br/><br>
• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.<br/><br>
• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific experts, but the connection with public opinion was more or less absent.<br/><br>
• Had the advisory committee worked more openly and allowed a multiplicity of perspectives being heard, the democratic and quality aspects in this legislation process would have been strengthened.}},
author = {{Hedlund, Maria}},
booktitle = {{Quality Issues in Clinical Genetic Services}},
editor = {{Kristoffersson, Ulf and Cassiman, J. J. and Schmidtke, Jörg}},
isbn = {{978-90-481-3918-7}},
keywords = {{expertise; democracy; bioethics; PGD; Sweden}},
language = {{eng}},
publisher = {{Springer}},
title = {{Democratic expert influence through bioethical advisory commissions? The case of Sweden}},
year = {{2010}},
}