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Democratic expert influence through bioethical advisory commissions? The case of Sweden

Hedlund, Maria LU (2010) In Quality Issues in Clinical Genetic Services
Abstract
Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.

• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.

• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.

• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific... (More)
Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.

• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.

• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.

• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific experts, but the connection with public opinion was more or less absent.

• Had the advisory committee worked more openly and allowed a multiplicity of perspectives being heard, the democratic and quality aspects in this legislation process would have been strengthened. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Chapter in Book/Report/Conference proceeding
publication status
published
subject
keywords
expertise, democracy, bioethics, PGD, Sweden
in
Quality Issues in Clinical Genetic Services
editor
Kristoffersson, Ulf; Cassiman, J. J. and Schmidtke, Jörg
publisher
Springer
ISBN
978-90-481-3918-7
language
English
LU publication?
yes
id
401cd6fe-f894-4a33-a406-9322a7fe011a (old id 2276802)
date added to LUP
2012-01-04 16:19:11
date last changed
2016-04-16 09:58:52
@inbook{401cd6fe-f894-4a33-a406-9322a7fe011a,
  abstract     = {Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.<br/><br>
•	Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.<br/><br>
•	Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.<br/><br>
•	In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific experts, but the connection with public opinion was more or less absent.<br/><br>
•	Had the advisory committee worked more openly and allowed a multiplicity of perspectives being heard, the democratic and quality aspects in this legislation process would have been strengthened.},
  author       = {Hedlund, Maria},
  editor       = {Kristoffersson, Ulf and Cassiman, J. J. and Schmidtke, Jörg},
  isbn         = {978-90-481-3918-7},
  keyword      = {expertise,democracy,bioethics,PGD,Sweden},
  language     = {eng},
  publisher    = {Springer},
  series       = {Quality Issues in Clinical Genetic Services},
  title        = {Democratic expert influence through bioethical advisory commissions? The case of Sweden},
  year         = {2010},
}