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Patient experienced side effects and adverse events after cancer treatment - Patient initiated research

Petersen, SH; Feldinger, B; Jessen, N; Kaufmann, H; Pedersen, Bolette LU and Tønnesen, Hanne LU (2011) In Clin Health Promotion 1(1). p.5-8
Abstract
Background:

In the literature radiation of head and neck cancer (HNC) is followed by late side effects for more than a

third of the patients. However, nearly all patients seem to experience side effects. The aim was to collect the multitude

of these experiences through a patient-developed detailed questionnaire.



Methods:

77 of 117 patients responded to a validated questionnaire from the Danish HNC patient network, age 61 (32 -

90) with 5 years (0 to 32) post treatment period.



Results:

99% of the patients experienced at least one side effect, 67% more than twenty symptoms categorised into

mouth complains, swallowing and eating problems,... (More)
Background:

In the literature radiation of head and neck cancer (HNC) is followed by late side effects for more than a

third of the patients. However, nearly all patients seem to experience side effects. The aim was to collect the multitude

of these experiences through a patient-developed detailed questionnaire.



Methods:

77 of 117 patients responded to a validated questionnaire from the Danish HNC patient network, age 61 (32 -

90) with 5 years (0 to 32) post treatment period.



Results:

99% of the patients experienced at least one side effect, 67% more than twenty symptoms categorised into

mouth complains, swallowing and eating problems, affected speaking ability, pain and fatigue during their daily living.

Ten years survival was the only significant prognostic factor OR 0.13 (CI 0.02-0.81). Only swallowing and eating problems

were significantly reduced over time (p=0.048) and in relation to calendar period (0.049), but not with increasing

age.



Conclusion:

The patients experienced pronounced sequelae, independent of gender, age and treatment/intervention. (Less)
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organization
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type
Contribution to journal
publication status
published
subject
in
Clin Health Promotion
volume
1
issue
1
pages
5 - 8
ISSN
2226-5864
language
English
LU publication?
yes
id
7fc06278-4d7f-4c14-96ce-e14356457c86 (old id 2364120)
alternative location
http://www.clinhp.org/index.php?option=com_content&view=article&id=11&Itemid=64
date added to LUP
2012-05-04 10:32:55
date last changed
2016-11-10 11:21:30
@article{7fc06278-4d7f-4c14-96ce-e14356457c86,
  abstract     = {Background:<br/><br>
In the literature radiation of head and neck cancer (HNC) is followed by late side effects for more than a<br/><br>
third of the patients. However, nearly all patients seem to experience side effects. The aim was to collect the multitude<br/><br>
of these experiences through a patient-developed detailed questionnaire.<br/><br>
<br/><br>
Methods:<br/><br>
77 of 117 patients responded to a validated questionnaire from the Danish HNC patient network, age 61 (32 -<br/><br>
90) with 5 years (0 to 32) post treatment period.<br/><br>
<br/><br>
Results:<br/><br>
99% of the patients experienced at least one side effect, 67% more than twenty symptoms categorised into<br/><br>
mouth complains, swallowing and eating problems, affected speaking ability, pain and fatigue during their daily living.<br/><br>
Ten years survival was the only significant prognostic factor OR 0.13 (CI 0.02-0.81). Only swallowing and eating problems<br/><br>
were significantly reduced over time (p=0.048) and in relation to calendar period (0.049), but not with increasing<br/><br>
age.<br/><br>
<br/><br>
Conclusion:<br/><br>
The patients experienced pronounced sequelae, independent of gender, age and treatment/intervention.},
  author       = {Petersen, SH and Feldinger, B and Jessen, N and Kaufmann, H and Pedersen, Bolette and Tønnesen, Hanne},
  issn         = {2226-5864},
  language     = {eng},
  number       = {1},
  pages        = {5--8},
  series       = {Clin Health Promotion},
  title        = {Patient experienced side effects and adverse events after cancer treatment - Patient initiated research},
  volume       = {1},
  year         = {2011},
}