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When is a patient with heart failure adequately informed? A study of patients' knowledge of and attitudes toward medical information

Ågård, Anders LU ; Hermerén, Göran LU and Herlitz, J (2004) In Heart & Lung 33(4). p.219-226
Abstract
OBJECTIVE: The primary aim was to explore patients' knowledge of heart failure and their attitudes toward medical information (prognostic information in particular) and to assess different patient-related factors that might hamper the improvement of patients' knowledge. Moreover, taking the data obtained into account, we analyzed ethical aspects of information disclosure to patients with heart failure. SETTING: The study was performed at Sahlgren's University Hospital in Gothenburg, Sweden. DESIGN: The study was a qualitative analysis of sernistructured interviews. PATIENTS: The sample included 40 patients with various stages of chronic heart failure. RESULTS: Many patients had only a limited understanding of their disease, but they still... (More)
OBJECTIVE: The primary aim was to explore patients' knowledge of heart failure and their attitudes toward medical information (prognostic information in particular) and to assess different patient-related factors that might hamper the improvement of patients' knowledge. Moreover, taking the data obtained into account, we analyzed ethical aspects of information disclosure to patients with heart failure. SETTING: The study was performed at Sahlgren's University Hospital in Gothenburg, Sweden. DESIGN: The study was a qualitative analysis of sernistructured interviews. PATIENTS: The sample included 40 patients with various stages of chronic heart failure. RESULTS: Many patients had only a limited understanding of their disease, but they still claimed that they were satisfied with the information they received. Some of them seemed to accept, to be indifferent to, or to be unaware of their low level of knowledge. The majority did not request prognostic information. CONCLUSION: We argue that patients with heart failure are adequately informed when they have reached the level of knowledge that enables them to be managed as effectively and securely as possible while being satisfied with the information provided. To give adequate information, health care providers should determine the patients' level of knowledge and explore why those patients who have a limited understanding do not assimilate or request information. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Heart & Lung
volume
33
issue
4
pages
219 - 226
publisher
Mosby
external identifiers
  • wos:000222905800003
  • scopus:3042698437
ISSN
1527-3288
DOI
10.1016/j.hrtlng.2004.02.003
language
English
LU publication?
yes
id
19d332b0-5cee-48b1-8576-febd837aa66a (old id 271734)
date added to LUP
2007-08-28 15:38:26
date last changed
2017-09-03 03:53:15
@article{19d332b0-5cee-48b1-8576-febd837aa66a,
  abstract     = {OBJECTIVE: The primary aim was to explore patients' knowledge of heart failure and their attitudes toward medical information (prognostic information in particular) and to assess different patient-related factors that might hamper the improvement of patients' knowledge. Moreover, taking the data obtained into account, we analyzed ethical aspects of information disclosure to patients with heart failure. SETTING: The study was performed at Sahlgren's University Hospital in Gothenburg, Sweden. DESIGN: The study was a qualitative analysis of sernistructured interviews. PATIENTS: The sample included 40 patients with various stages of chronic heart failure. RESULTS: Many patients had only a limited understanding of their disease, but they still claimed that they were satisfied with the information they received. Some of them seemed to accept, to be indifferent to, or to be unaware of their low level of knowledge. The majority did not request prognostic information. CONCLUSION: We argue that patients with heart failure are adequately informed when they have reached the level of knowledge that enables them to be managed as effectively and securely as possible while being satisfied with the information provided. To give adequate information, health care providers should determine the patients' level of knowledge and explore why those patients who have a limited understanding do not assimilate or request information.},
  author       = {Ågård, Anders and Hermerén, Göran and Herlitz, J},
  issn         = {1527-3288},
  language     = {eng},
  number       = {4},
  pages        = {219--226},
  publisher    = {Mosby},
  series       = {Heart & Lung},
  title        = {When is a patient with heart failure adequately informed? A study of patients' knowledge of and attitudes toward medical information},
  url          = {http://dx.doi.org/10.1016/j.hrtlng.2004.02.003},
  volume       = {33},
  year         = {2004},
}