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Recent developments in clinimetric instruments

Beeton, K ; De Kleijn, P ; Hilliard, P ; Funk, S ; Zourikian, N ; Bergstrom, BM ; Engelbert, RHH ; Van der Net, JJ ; Manco-Johnson, MJ and Petrini, P , et al. (2006) In Haemophilia 12(Suppl. 3). p.102-107
Abstract
Assessment of impairment and function is essential in order to monitor joint status and evaluate therapeutic interventions in patients with haemophilia. The improvements in the treatment of haemophilia have required the development of more sensitive tools to detect the more minor dysfunctions that may now be apparent. This paper outlines some of the recent developments in this field. The Haemophilia Joint Health Score (HJHS) provides a systematic and robust measure of joint impairment. The MRI Scoring System has been designed to provide a comprehensive scoring system combining both progressive and additive scales. The Functional Independence Score for Haemophilia (FISH) has been developed to assess performance of functional activities and... (More)
Assessment of impairment and function is essential in order to monitor joint status and evaluate therapeutic interventions in patients with haemophilia. The improvements in the treatment of haemophilia have required the development of more sensitive tools to detect the more minor dysfunctions that may now be apparent. This paper outlines some of the recent developments in this field. The Haemophilia Joint Health Score (HJHS) provides a systematic and robust measure of joint impairment. The MRI Scoring System has been designed to provide a comprehensive scoring system combining both progressive and additive scales. The Functional Independence Score for Haemophilia (FISH) has been developed to assess performance of functional activities and can be used in conjunction with the Haemophilia Activities List (HAL) which provides a self report measure of function. It is recommended that both measures are evaluated as these tools measure different constructs. Further refinement and testing of the psychometric properties of all of these tools is in progress. More widespread use of these tools will enable the sharing of data across the world so promoting best practice and ultimately enhancing patient care. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
HAL, FISH, MRI Score, clinimetric instruments, HJSS
in
Haemophilia
volume
12
issue
Suppl. 3
pages
102 - 107
publisher
Wiley-Blackwell
external identifiers
  • wos:000237117700014
  • scopus:33646137401
  • pmid:16684003
ISSN
1351-8216
DOI
10.1111/j.1365-2516.2006.01265.x
language
English
LU publication?
yes
id
29d37f6a-7c68-489e-b523-5aea2eacd33f (old id 410820)
date added to LUP
2016-04-01 11:46:18
date last changed
2022-08-20 21:37:03
@article{29d37f6a-7c68-489e-b523-5aea2eacd33f,
  abstract     = {{Assessment of impairment and function is essential in order to monitor joint status and evaluate therapeutic interventions in patients with haemophilia. The improvements in the treatment of haemophilia have required the development of more sensitive tools to detect the more minor dysfunctions that may now be apparent. This paper outlines some of the recent developments in this field. The Haemophilia Joint Health Score (HJHS) provides a systematic and robust measure of joint impairment. The MRI Scoring System has been designed to provide a comprehensive scoring system combining both progressive and additive scales. The Functional Independence Score for Haemophilia (FISH) has been developed to assess performance of functional activities and can be used in conjunction with the Haemophilia Activities List (HAL) which provides a self report measure of function. It is recommended that both measures are evaluated as these tools measure different constructs. Further refinement and testing of the psychometric properties of all of these tools is in progress. More widespread use of these tools will enable the sharing of data across the world so promoting best practice and ultimately enhancing patient care.}},
  author       = {{Beeton, K and De Kleijn, P and Hilliard, P and Funk, S and Zourikian, N and Bergstrom, BM and Engelbert, RHH and Van der Net, JJ and Manco-Johnson, MJ and Petrini, P and Van den Berg, M and Abad, A and Feldman, BM and Doria, AS and Lundin, Björn and Poonnoose, PM and John, JA and Kavitha, ML and Padankatti, SM and Devadarasini, M and Pazani, D and Srivastava, A and Van Genderen, FR and Vachalathiti, R}},
  issn         = {{1351-8216}},
  keywords     = {{HAL; FISH; MRI Score; clinimetric instruments; HJSS}},
  language     = {{eng}},
  number       = {{Suppl. 3}},
  pages        = {{102--107}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Haemophilia}},
  title        = {{Recent developments in clinimetric instruments}},
  url          = {{http://dx.doi.org/10.1111/j.1365-2516.2006.01265.x}},
  doi          = {{10.1111/j.1365-2516.2006.01265.x}},
  volume       = {{12}},
  year         = {{2006}},
}