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Cost analysis of informal care : estimates from a national cross-sectional survey in Sweden

Ekman, Björn LU orcid ; McKee, Kevin ; Vicente, Joana ; Magnusson, Lennart and Hanson, Elizabeth (2021) In BMC Health Services Research 21(1).
Abstract

Background: Over the past decades, informal care has increased in most OECD-countries. Informal care is costly to caregivers and to society in the form of lost income and direct costs of providing care. Existing evidence suggests that providing informal care affects caregivers’ overall health. However, estimates of the social costs of informal care based on national data on individuals are currently scarce. Objective: This study contributes to the existing evidence on the costs of informal care by estimating the direct and indirect costs to caregivers using a purposive national household survey from Sweden. Methods: Adopting a bottom-up, prevalence approach, the direct and indirect costs are estimated using the survey data and the value... (More)

Background: Over the past decades, informal care has increased in most OECD-countries. Informal care is costly to caregivers and to society in the form of lost income and direct costs of providing care. Existing evidence suggests that providing informal care affects caregivers’ overall health. However, estimates of the social costs of informal care based on national data on individuals are currently scarce. Objective: This study contributes to the existing evidence on the costs of informal care by estimating the direct and indirect costs to caregivers using a purposive national household survey from Sweden. Methods: Adopting a bottom-up, prevalence approach, the direct and indirect costs are estimated using the survey data and the value of working time and leisure time from existing sources. Results: The results suggest that around 15% of the adult population of Sweden provide informal care and that such care costs around SEK 152 billion per year (around 3% of GDP; USD 16,3 billion; EUR 14,5 billion), or SEK 128000 per caregiver. Around 55% of costs are in the form of income loss to caregivers. The largest cost items are reduced work hours and direct costs of providing informal care. Replacing informal caregivers with professional care providers would be costly at around SEK 193,6 billion per year. Conclusions: Findings indicate that, even in a country with a relatively generous welfare system, significant resources are allocated toward providing informal care. The costing analysis suggests that effective support initiatives to ease the burden of informal caregivers may be cost-effective.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Costs and cost analysis, Informal care, Survey, Sweden
in
BMC Health Services Research
volume
21
issue
1
article number
1236
publisher
BioMed Central (BMC)
external identifiers
  • scopus:85119070134
  • pmid:34781938
ISSN
1472-6963
DOI
10.1186/s12913-021-07264-9
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2021, The Author(s).
id
2d52aec9-5758-4330-a797-a6f4a3134d6e
date added to LUP
2021-12-02 16:54:25
date last changed
2024-06-21 02:16:06
@article{2d52aec9-5758-4330-a797-a6f4a3134d6e,
  abstract     = {{<p>Background: Over the past decades, informal care has increased in most OECD-countries. Informal care is costly to caregivers and to society in the form of lost income and direct costs of providing care. Existing evidence suggests that providing informal care affects caregivers’ overall health. However, estimates of the social costs of informal care based on national data on individuals are currently scarce. Objective: This study contributes to the existing evidence on the costs of informal care by estimating the direct and indirect costs to caregivers using a purposive national household survey from Sweden. Methods: Adopting a bottom-up, prevalence approach, the direct and indirect costs are estimated using the survey data and the value of working time and leisure time from existing sources. Results: The results suggest that around 15% of the adult population of Sweden provide informal care and that such care costs around SEK 152 billion per year (around 3% of GDP; USD 16,3 billion; EUR 14,5 billion), or SEK 128000 per caregiver. Around 55% of costs are in the form of income loss to caregivers. The largest cost items are reduced work hours and direct costs of providing informal care. Replacing informal caregivers with professional care providers would be costly at around SEK 193,6 billion per year. Conclusions: Findings indicate that, even in a country with a relatively generous welfare system, significant resources are allocated toward providing informal care. The costing analysis suggests that effective support initiatives to ease the burden of informal caregivers may be cost-effective.</p>}},
  author       = {{Ekman, Björn and McKee, Kevin and Vicente, Joana and Magnusson, Lennart and Hanson, Elizabeth}},
  issn         = {{1472-6963}},
  keywords     = {{Costs and cost analysis; Informal care; Survey; Sweden}},
  language     = {{eng}},
  number       = {{1}},
  publisher    = {{BioMed Central (BMC)}},
  series       = {{BMC Health Services Research}},
  title        = {{Cost analysis of informal care : estimates from a national cross-sectional survey in Sweden}},
  url          = {{http://dx.doi.org/10.1186/s12913-021-07264-9}},
  doi          = {{10.1186/s12913-021-07264-9}},
  volume       = {{21}},
  year         = {{2021}},
}