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Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease

Svensson, Birgitta LU ; Idvall, Ewa; Nilsson, Fredrik LU and Liuba, Petru LU (2016) In Cardiology in the Young
Abstract

Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100... (More)

Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10–90th percentiles. Results: The overall total score was 95 (88–100). Children with a biventricular heart who had undergone three or more surgeries (n=31; 9%) had the lowest total score of 81 (61–97; p

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author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
CHD, children, Health-related quality of life, registry study
in
Cardiology in the Young
pages
11 pages
publisher
Cambridge University Press
external identifiers
  • Scopus:84970005767
ISSN
1047-9511
DOI
10.1017/S1047951116000585
language
English
LU publication?
yes
id
2f8471cf-5298-40ed-8751-f9d9623b44c3
date added to LUP
2016-06-17 15:29:59
date last changed
2017-01-01 08:28:18
@article{2f8471cf-5298-40ed-8751-f9d9623b44c3,
  abstract     = {<p>Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10–90th percentiles. Results: The overall total score was 95 (88–100). Children with a biventricular heart who had undergone three or more surgeries (n=31; 9%) had the lowest total score of 81 (61–97; p</p>},
  author       = {Svensson, Birgitta and Idvall, Ewa and Nilsson, Fredrik and Liuba, Petru},
  issn         = {1047-9511},
  keyword      = {CHD,children,Health-related quality of life,registry study},
  language     = {eng},
  month        = {05},
  pages        = {11},
  publisher    = {Cambridge University Press},
  series       = {Cardiology in the Young},
  title        = {Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease},
  url          = {http://dx.doi.org/10.1017/S1047951116000585},
  year         = {2016},
}