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Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease

Svensson, Birgitta LU ; Idvall, Ewa ; Nilsson, Fredrik LU and Liuba, Petru LU (2017) In Cardiology in the Young 27(2). p.333-343
Abstract

Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100... (More)

Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10–90th percentiles. Results: The overall total score was 95 (88–100). Children with a biventricular heart who had undergone three or more surgeries (n=31; 9%) had the lowest total score of 81 (61–97; p

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
CHD, children, Health-related quality of life, registry study
in
Cardiology in the Young
volume
27
issue
2
pages
333 - 343
publisher
Cambridge University Press
external identifiers
  • pmid:27225489
  • wos:000398111200017
  • scopus:84970005767
ISSN
1047-9511
DOI
10.1017/S1047951116000585
language
English
LU publication?
yes
id
2f8471cf-5298-40ed-8751-f9d9623b44c3
date added to LUP
2016-06-17 15:29:59
date last changed
2025-01-12 07:27:38
@article{2f8471cf-5298-40ed-8751-f9d9623b44c3,
  abstract     = {{<p>Background: As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10–90th percentiles. Results: The overall total score was 95 (88–100). Children with a biventricular heart who had undergone three or more surgeries (n=31; 9%) had the lowest total score of 81 (61–97; p</p>}},
  author       = {{Svensson, Birgitta and Idvall, Ewa and Nilsson, Fredrik and Liuba, Petru}},
  issn         = {{1047-9511}},
  keywords     = {{CHD; children; Health-related quality of life; registry study}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{333--343}},
  publisher    = {{Cambridge University Press}},
  series       = {{Cardiology in the Young}},
  title        = {{Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease}},
  url          = {{https://lup.lub.lu.se/search/files/15505027/8476613.pdf}},
  doi          = {{10.1017/S1047951116000585}},
  volume       = {{27}},
  year         = {{2017}},
}