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Prenatal compared with postnatal cleft diagnosis: What do the parents think?

Berggren, Helena; Hansson, Emma LU ; Uvemark, Annika; Svensson, Henry LU and Becker, Magnus LU (2012) In Journal of Plastic Surgery and Hand Surgery 46(3-4). p.235-241
Abstract
Since the 1980s, prenatal detection of cleft lip with or without cleft palate (CLP) is possible with a transabdominal ultrasound. The improvement of prenatal detection has resulted in an increased demand for prenatal information and counselling. The aim of this study was to, by means of a questionnaire, evaluate how families, who received the diagnosis prenatally and postnatally, respectively, think about the prenatal and postnatal consultation. Patients referred prenatally or postnatally to the department, due to CLP, between January 2006 and September 2010 were included in the study. Thirty-six of the families (95%) answered the questionnaire concerning prenatal counselling. A total of 46 parents (82%) answered the questionnaire... (More)
Since the 1980s, prenatal detection of cleft lip with or without cleft palate (CLP) is possible with a transabdominal ultrasound. The improvement of prenatal detection has resulted in an increased demand for prenatal information and counselling. The aim of this study was to, by means of a questionnaire, evaluate how families, who received the diagnosis prenatally and postnatally, respectively, think about the prenatal and postnatal consultation. Patients referred prenatally or postnatally to the department, due to CLP, between January 2006 and September 2010 were included in the study. Thirty-six of the families (95%) answered the questionnaire concerning prenatal counselling. A total of 46 parents (82%) answered the questionnaire concerning postnatal counselling. In the prenatal group, half of the patients were first informed by the ultrasound unit, whereas 16% were initially informed by the cleft team. More of the families that were informed by the cleft team were content with the information received than the families who were informed by the ultrasound unit. The majority of the families were satisfied with the structure of the consultation. Most of the patients in the postnatal group were happy with the postnatal consultation. Most of the parents in the postnatal group would have wanted to know about the diagnosis prenatally. The great majority of the parents was happy with the consultation with the cleft team and thought that they received enough information. However, the information received at the referring units could be improved. Parents seem to want information on the cleft diagnosis and its treatment as soon as possible. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Journal of Plastic Surgery and Hand Surgery
volume
46
issue
3-4
pages
235 - 241
publisher
Taylor & Francis
external identifiers
  • wos:000308854000021
  • pmid:22909240
  • scopus:84865479666
ISSN
2000-656X
DOI
10.3109/2000656X.2012.698416
language
English
LU publication?
yes
id
f1986b68-adcf-4583-8fa5-506f21d71297 (old id 3047348)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22909240?dopt=Abstract
date added to LUP
2012-09-05 20:18:51
date last changed
2017-11-19 04:18:19
@article{f1986b68-adcf-4583-8fa5-506f21d71297,
  abstract     = {Since the 1980s, prenatal detection of cleft lip with or without cleft palate (CLP) is possible with a transabdominal ultrasound. The improvement of prenatal detection has resulted in an increased demand for prenatal information and counselling. The aim of this study was to, by means of a questionnaire, evaluate how families, who received the diagnosis prenatally and postnatally, respectively, think about the prenatal and postnatal consultation. Patients referred prenatally or postnatally to the department, due to CLP, between January 2006 and September 2010 were included in the study. Thirty-six of the families (95%) answered the questionnaire concerning prenatal counselling. A total of 46 parents (82%) answered the questionnaire concerning postnatal counselling. In the prenatal group, half of the patients were first informed by the ultrasound unit, whereas 16% were initially informed by the cleft team. More of the families that were informed by the cleft team were content with the information received than the families who were informed by the ultrasound unit. The majority of the families were satisfied with the structure of the consultation. Most of the patients in the postnatal group were happy with the postnatal consultation. Most of the parents in the postnatal group would have wanted to know about the diagnosis prenatally. The great majority of the parents was happy with the consultation with the cleft team and thought that they received enough information. However, the information received at the referring units could be improved. Parents seem to want information on the cleft diagnosis and its treatment as soon as possible.},
  author       = {Berggren, Helena and Hansson, Emma and Uvemark, Annika and Svensson, Henry and Becker, Magnus},
  issn         = {2000-656X},
  language     = {eng},
  number       = {3-4},
  pages        = {235--241},
  publisher    = {Taylor & Francis},
  series       = {Journal of Plastic Surgery and Hand Surgery},
  title        = {Prenatal compared with postnatal cleft diagnosis: What do the parents think?},
  url          = {http://dx.doi.org/10.3109/2000656X.2012.698416},
  volume       = {46},
  year         = {2012},
}