Inter-Professional Caring for Children Who Are Relatives of Cancer Patients in Palliative Care: Perspectives of Doctors and Social Workers
Karidar, Hakima LU
and Glasdam, Stinne
LU
(2018)
EAPC 2019 16th World Congress of the European Association for Palliative Care p.129-129
- Abstract
- Background: A palliative cancer diagnosis in a parent has a major impact on many aspects of their children’s lives. Studies show that professionals in the oncological field do not seem to offer relatives, in general, much attention. Aim: to explore how doctors and social workers handle children of cancer patients in order to understand the possibilities and difficulties in supporting children in specialized palliative home care in Sweden.
Method:
Qualitative semi-structured interviews of five doctors and five social workers in Skane.
Interview length 57-73 minutes. A detailed description of its latest work pass. Sociologically inspired content analysis, inspired by Bourdieu’s theoretical concepts of capital, position, power and... (More) - Background: A palliative cancer diagnosis in a parent has a major impact on many aspects of their children’s lives. Studies show that professionals in the oncological field do not seem to offer relatives, in general, much attention. Aim: to explore how doctors and social workers handle children of cancer patients in order to understand the possibilities and difficulties in supporting children in specialized palliative home care in Sweden.
Method:
Qualitative semi-structured interviews of five doctors and five social workers in Skane.
Interview length 57-73 minutes. A detailed description of its latest work pass. Sociologically inspired content analysis, inspired by Bourdieu’s theoretical concepts of capital, position, power and field.
Results:
Meetings were an organizing structure for the working day’
Due to hierarchical positions, doctors often set the agenda for interprofessional teamwork and directed the collaboration between doctors and social workers
Doctors and social workers seldom met patients’ children
Doctors only met children when information about parents’ cancer diseases was needed
Social workers were responsible for psychosocial issues, but only especially vulnerable families and their children were prioritized
Parents had the primary responsibility for their children
Meetings between children and professionals were conditional on parental permission.
Even when permission was granted, physical meetings seldom took place
Children were often not at home when professionals visited the patient; often home visits during the day shift
Patient’s death meant no professional contact with children
Conclusion: Doctors and social workers were subject to the structural frame and a medical logic, which limited their interactions with children of the cancer patients. The organization of the clinic facilitated exclusion of patients' children as the focus area for professionals. Children were dependent on both their parents and professionals, who had the power to include or exclude them from the parent’s illness situation.
(Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/31fbf5cd-0ded-4e28-886b-4357d0fec08c
- author
- Karidar, Hakima
LU
and Glasdam, Stinne
LU
- organization
- publishing date
- 2018-09-26
- type
- Contribution to conference
- publication status
- published
- subject
- pages
- 129 - 129
- conference name
- EAPC 2019 <br/>16th World Congress of the European Association for Palliative Care
- conference location
- Berlin, Germany
- conference dates
- 2019-05-23 - 2019-05-25
- language
- English
- LU publication?
- yes
- id
- 31fbf5cd-0ded-4e28-886b-4357d0fec08c
- date added to LUP
- 2023-10-13 16:05:54
- date last changed
- 2023-10-16 09:42:16
@misc{31fbf5cd-0ded-4e28-886b-4357d0fec08c,
abstract = {{Background: A palliative cancer diagnosis in a parent has a major impact on many aspects of their children’s lives. Studies show that professionals in the oncological field do not seem to offer relatives, in general, much attention. Aim: to explore how doctors and social workers handle children of cancer patients in order to understand the possibilities and difficulties in supporting children in specialized palliative home care in Sweden.<br/>Method:<br/>Qualitative semi-structured interviews of five doctors and five social workers in Skane.<br/>Interview length 57-73 minutes. A detailed description of its latest work pass. Sociologically inspired content analysis, inspired by Bourdieu’s theoretical concepts of capital, position, power and field.<br/>Results:<br/>Meetings were an organizing structure for the working day’<br/>Due to hierarchical positions, doctors often set the agenda for interprofessional teamwork and directed the collaboration between doctors and social workers<br/>Doctors and social workers seldom met patients’ children<br/>Doctors only met children when information about parents’ cancer diseases was needed<br/>Social workers were responsible for psychosocial issues, but only especially vulnerable families and their children were prioritized<br/>Parents had the primary responsibility for their children<br/>Meetings between children and professionals were conditional on parental permission.<br/>Even when permission was granted, physical meetings seldom took place<br/>Children were often not at home when professionals visited the patient; often home visits during the day shift<br/>Patient’s death meant no professional contact with children<br/>Conclusion: Doctors and social workers were subject to the structural frame and a medical logic, which limited their interactions with children of the cancer patients. The organization of the clinic facilitated exclusion of patients' children as the focus area for professionals. Children were dependent on both their parents and professionals, who had the power to include or exclude them from the parent’s illness situation.<br/><br/>}},
author = {{Karidar, Hakima and Glasdam, Stinne}},
language = {{eng}},
month = {{09}},
pages = {{129--129}},
title = {{Inter-Professional Caring for Children Who Are Relatives of Cancer Patients in Palliative Care: Perspectives of Doctors and Social Workers}},
url = {{https://lup.lub.lu.se/search/files/161855240/abstraktbok_berlin_2019.pdf}},
year = {{2018}},
}