Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease : A qualitative interview study
Skär, Lisa ; Borg, Christel ; Emtner, Margareta and Ekström, Magnus LU
(2023)
In Nursing Open
10(4).
p.2158-2164
- Abstract
Aim: The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long-term oxygen treatment think about and expect end-of-life. Design: A qualitative design was used. Methods: A purposeful sample of 19 patients with oxygen-dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi-structured interviews and analysed using a hermeneutic approach. Results: The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should... (More)
Aim: The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long-term oxygen treatment think about and expect end-of-life. Design: A qualitative design was used. Methods: A purposeful sample of 19 patients with oxygen-dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi-structured interviews and analysed using a hermeneutic approach. Results: The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should invite them to mutual discussions as it was easier to reject an invitation if they could not talk right then, than to initiate a discussion themselves. Start of home oxygen or a deteriorating health status may be an important time to clinically address existential and end-of-life issues.
(Less)
- author
- Skär, Lisa
; Borg, Christel
; Emtner, Margareta
and Ekström, Magnus
LU
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Nursing Open
- volume
- 10
- issue
- 4
- pages
- 2158 - 2164
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:36334046
- scopus:85141516298
- ISSN
- 2054-1058
- DOI
- 10.1002/nop2.1463
- language
- English
- LU publication?
- yes
- id
- 390d5431-3766-47a7-95a0-3e773f33c7e9
- date added to LUP
- 2022-12-20 16:16:45
- date last changed
- 2024-06-28 01:17:06
@article{390d5431-3766-47a7-95a0-3e773f33c7e9,
abstract = {{<p>Aim: The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long-term oxygen treatment think about and expect end-of-life. Design: A qualitative design was used. Methods: A purposeful sample of 19 patients with oxygen-dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi-structured interviews and analysed using a hermeneutic approach. Results: The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should invite them to mutual discussions as it was easier to reject an invitation if they could not talk right then, than to initiate a discussion themselves. Start of home oxygen or a deteriorating health status may be an important time to clinically address existential and end-of-life issues.</p>}},
author = {{Skär, Lisa and Borg, Christel and Emtner, Margareta and Ekström, Magnus}},
issn = {{2054-1058}},
language = {{eng}},
number = {{4}},
pages = {{2158--2164}},
publisher = {{Wiley-Blackwell}},
series = {{Nursing Open}},
title = {{Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease : A qualitative interview study}},
url = {{http://dx.doi.org/10.1002/nop2.1463}},
doi = {{10.1002/nop2.1463}},
volume = {{10}},
year = {{2023}},
}