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Adherence to guidelines in the clinical care for adults with congenital heart disease: The Euro Heart Survey on adult congenital heart disease

Engelfriet, P ; Tijssen, J ; Kaemmerer, H ; Gatzoulis, MA ; Boersma, E ; Oechslin, E ; Thaulow, E ; Popelova, J ; Moons, P and Meijboom, F , et al. (2006) In European Heart Journal 27(6). p.737-745
Abstract
Aims To investigate the role of guidelines in structuring the clinical care for adult patients with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe. Methods and results A selected number of current guidelines were chosen pertaining to operative procedures, investigations, and the use of medication ('interventions'). The source for this analysis was the database of the Euro Heart Survey on adult CHD, which contains retrospectively collected data on 4110 patients followed-up for a median of 5.1 years. For each guideline investigated, patients were selected from the database for whom the particular guideline was relevant. The selected cases were classified according to two criteria: was there an indication... (More)
Aims To investigate the role of guidelines in structuring the clinical care for adult patients with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe. Methods and results A selected number of current guidelines were chosen pertaining to operative procedures, investigations, and the use of medication ('interventions'). The source for this analysis was the database of the Euro Heart Survey on adult CHD, which contains retrospectively collected data on 4110 patients followed-up for a median of 5.1 years. For each guideline investigated, patients were selected from the database for whom the particular guideline was relevant. The selected cases were classified according to two criteria: was there an indication for the particular intervention and did the intervention take place? In this manner, cases of 'undue treatment' and 'insufficient treatment' were identified. Adherence to guidelines was found to be good in the case of operative procedures and prophylactic drug treatment. However, regarding diagnostic procedures there had been adherence to guidelines in only slightly more than half of the cases. Conclusion Guidelines have an important role in the actual clinical care of adults with CHD. However, large outcome studies are needed to develop more precise guidelines. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Euro Heart, Survey, adherence to guidelines, congenital heart disease, adult
in
European Heart Journal
volume
27
issue
6
pages
737 - 745
publisher
Oxford University Press
external identifiers
  • pmid:16401672
  • wos:000235771600021
  • scopus:33644977647
  • pmid:16401672
ISSN
1522-9645
DOI
10.1093/eurheartj/ehi718
language
English
LU publication?
yes
id
132643ea-53e4-4465-8923-af0ae6599e9f (old id 416803)
date added to LUP
2016-04-01 16:21:23
date last changed
2022-01-28 19:06:51
@article{132643ea-53e4-4465-8923-af0ae6599e9f,
  abstract     = {{Aims To investigate the role of guidelines in structuring the clinical care for adult patients with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe. Methods and results A selected number of current guidelines were chosen pertaining to operative procedures, investigations, and the use of medication ('interventions'). The source for this analysis was the database of the Euro Heart Survey on adult CHD, which contains retrospectively collected data on 4110 patients followed-up for a median of 5.1 years. For each guideline investigated, patients were selected from the database for whom the particular guideline was relevant. The selected cases were classified according to two criteria: was there an indication for the particular intervention and did the intervention take place? In this manner, cases of 'undue treatment' and 'insufficient treatment' were identified. Adherence to guidelines was found to be good in the case of operative procedures and prophylactic drug treatment. However, regarding diagnostic procedures there had been adherence to guidelines in only slightly more than half of the cases. Conclusion Guidelines have an important role in the actual clinical care of adults with CHD. However, large outcome studies are needed to develop more precise guidelines.}},
  author       = {{Engelfriet, P and Tijssen, J and Kaemmerer, H and Gatzoulis, MA and Boersma, E and Oechslin, E and Thaulow, E and Popelova, J and Moons, P and Meijboom, F and Daliento, L and Hirsch, R and Laforest, V and Thilén, Ulf and Mulder, B}},
  issn         = {{1522-9645}},
  keywords     = {{Euro Heart; Survey; adherence to guidelines; congenital heart disease; adult}},
  language     = {{eng}},
  number       = {{6}},
  pages        = {{737--745}},
  publisher    = {{Oxford University Press}},
  series       = {{European Heart Journal}},
  title        = {{Adherence to guidelines in the clinical care for adults with congenital heart disease: The Euro Heart Survey on adult congenital heart disease}},
  url          = {{http://dx.doi.org/10.1093/eurheartj/ehi718}},
  doi          = {{10.1093/eurheartj/ehi718}},
  volume       = {{27}},
  year         = {{2006}},
}