Advanced

Adolescents with anorectal malfromation: physical outcome, sexual health and quality of life

Stenström, Pernilla LU ; Clementson Kockum, Christina LU ; Katsianikou Benér, Despina; Ivarsson, Camilla and Arnbjörnsson, Einar LU (2014) In International Journal of Adolescent Medicine and Health 26(1). p.49-59
Abstract
Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health.

Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.

Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.

Results: Fecal soiling, constipation and gas... (More)
Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health.

Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.

Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.

Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with the controls (p<0.05). QoL regarding large bowel function was lower for both genders compared with the controls (p<0.05). Females scored lower in physically related QoL (p<0.05). Social and sexual adaption was transparent in the deep interviews.

Conclusion: Adolescents with ARM have considerable intestinal symptoms, influencing QoL and requiring adaption in intimate situations. A referral to adult care seems important and a continuous cooperation between the pediatric surgeon and adult care is suggested. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
anorectal malformations, adolescence, fecal incontinence, quality of life, sexual health
in
International Journal of Adolescent Medicine and Health
volume
26
issue
1
pages
49 - 59
publisher
De Gruyter
external identifiers
  • scopus:84901721995
ISSN
0334-0139
DOI
10.1515/ijamh-2012-0111
language
English
LU publication?
yes
id
6a0b0cd8-9b84-42e7-85cb-45c69d681967 (old id 4407190)
date added to LUP
2016-02-02 11:36:01
date last changed
2017-06-11 04:15:55
@article{6a0b0cd8-9b84-42e7-85cb-45c69d681967,
  abstract     = {Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health. <br/><br>
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.<br/><br>
Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.<br/><br>
Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with the controls (p&lt;0.05). QoL regarding large bowel function was lower for both genders compared with the controls (p&lt;0.05). Females scored lower in physically related QoL (p&lt;0.05). Social and sexual adaption was transparent in the deep interviews.<br/><br>
Conclusion: Adolescents with ARM have considerable intestinal symptoms, influencing QoL and requiring adaption in intimate situations. A referral to adult care seems important and a continuous cooperation between the pediatric surgeon and adult care is suggested.},
  author       = {Stenström, Pernilla and Clementson Kockum, Christina and Katsianikou Benér, Despina and Ivarsson, Camilla and Arnbjörnsson, Einar},
  issn         = {0334-0139},
  keyword      = {anorectal malformations,adolescence,fecal incontinence,quality of life,sexual health},
  language     = {eng},
  number       = {1},
  pages        = {49--59},
  publisher    = {De Gruyter},
  series       = {International Journal of Adolescent Medicine and Health},
  title        = {Adolescents with anorectal malfromation: physical outcome, sexual health and quality of life},
  url          = {http://dx.doi.org/10.1515/ijamh-2012-0111},
  volume       = {26},
  year         = {2014},
}