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Spina bifida global learning collaborative : Educating the next generation of clinicians, researchers, and advocates

Dosa, Nienke P ; Ahmed, Yakob S ; Alriksson-Schmidt, Ann LU ; Castillo, Heidi ; Contepomi, Silvana ; Locastro, Mary M ; Koning, Jan ; Koutsouros, George ; Kutwa, Elly and Mahorta, Anjali , et al. (2023) In Journal of Pediatric Rehabilitation Medicine 16(4). p.657-663
Abstract

PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.

METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated... (More)

PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.

METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.

RESULTS: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.

CONCLUSION: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.

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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Spina bifida, global health, interprofessional education
in
Journal of Pediatric Rehabilitation Medicine
volume
16
issue
4
pages
7 pages
publisher
IOS Press
external identifiers
  • scopus:85181395306
  • pmid:38143399
ISSN
1874-5393
DOI
10.3233/PRM-230037
language
English
LU publication?
yes
id
4440df90-e732-4e86-b20f-acc480f10847
date added to LUP
2023-12-29 19:03:29
date last changed
2024-04-18 11:32:04
@article{4440df90-e732-4e86-b20f-acc480f10847,
  abstract     = {{<p>PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.</p><p>METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.</p><p>RESULTS: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.</p><p>CONCLUSION: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.</p>}},
  author       = {{Dosa, Nienke P and Ahmed, Yakob S and Alriksson-Schmidt, Ann and Castillo, Heidi and Contepomi, Silvana and Locastro, Mary M and Koning, Jan and Koutsouros, George and Kutwa, Elly and Mahorta, Anjali and MacFarland, Shade and Öhrvall, Ann-Marie and O'Neill, Patricia and Overvelde, Anneloes and Peny-Dahlstrand, Marie and Shaw, Andrea and Stockman, Jessica and Tovar-Spinoza, Zulma and Castillo, Jonathan}},
  issn         = {{1874-5393}},
  keywords     = {{Spina bifida; global health; interprofessional education}},
  language     = {{eng}},
  month        = {{12}},
  number       = {{4}},
  pages        = {{657--663}},
  publisher    = {{IOS Press}},
  series       = {{Journal of Pediatric Rehabilitation Medicine}},
  title        = {{Spina bifida global learning collaborative : Educating the next generation of clinicians, researchers, and advocates}},
  url          = {{http://dx.doi.org/10.3233/PRM-230037}},
  doi          = {{10.3233/PRM-230037}},
  volume       = {{16}},
  year         = {{2023}},
}