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Balancing Life with an Increased Risk of Cancer: Lived Experiences in Healthy Individuals with Lynch Syndrome

Petersen, Helle Vendel; Nilbert, Mef LU ; Bernstein, Inge and Carlsson, Christina LU (2014) In Journal of Genetic Counseling 23(5). p.778-784
Abstract
Possibilities to undergo predictive genetic testing for cancer have expanded, which implies that an increasing number of healthy individuals will learn about cancer predisposition. Knowledge about how an increased risk of disease influences life in a long-term perspective is largely unknown, which led us to explore lived experiences in healthy mutation carriers with Lynch syndrome. Individual interviews were subjected to descriptive phenomenological analysis. Four constitutions, namely, family context, interpretation and transformation, approach to risk and balancing life at risk were identified and formed the essence of the phenomenon "living with knowledge about risk." Family context influences how experiences and knowledge are... (More)
Possibilities to undergo predictive genetic testing for cancer have expanded, which implies that an increasing number of healthy individuals will learn about cancer predisposition. Knowledge about how an increased risk of disease influences life in a long-term perspective is largely unknown, which led us to explore lived experiences in healthy mutation carriers with Lynch syndrome. Individual interviews were subjected to descriptive phenomenological analysis. Four constitutions, namely, family context, interpretation and transformation, approach to risk and balancing life at risk were identified and formed the essence of the phenomenon "living with knowledge about risk." Family context influences how experiences and knowledge are interpreted and transformed into thoughts and feelings, which relates to how risk is approached and handled. The constitutions influence each other in a dynamic relationship and create a balancing act between anxiety and worry and feelings of being safe and in control. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Hereditary cancer, Risk perception, Balancing life, Family context, Phenomenological research method
in
Journal of Genetic Counseling
volume
23
issue
5
pages
778 - 784
publisher
Springer
external identifiers
  • wos:000341840500010
ISSN
1059-7700
DOI
10.1007/s10897-013-9682-3
language
English
LU publication?
yes
id
254e0c3e-3bbb-4e70-9582-7a10e5b10b83 (old id 4709942)
date added to LUP
2014-11-03 07:18:26
date last changed
2016-04-15 16:00:58
@article{254e0c3e-3bbb-4e70-9582-7a10e5b10b83,
  abstract     = {Possibilities to undergo predictive genetic testing for cancer have expanded, which implies that an increasing number of healthy individuals will learn about cancer predisposition. Knowledge about how an increased risk of disease influences life in a long-term perspective is largely unknown, which led us to explore lived experiences in healthy mutation carriers with Lynch syndrome. Individual interviews were subjected to descriptive phenomenological analysis. Four constitutions, namely, family context, interpretation and transformation, approach to risk and balancing life at risk were identified and formed the essence of the phenomenon "living with knowledge about risk." Family context influences how experiences and knowledge are interpreted and transformed into thoughts and feelings, which relates to how risk is approached and handled. The constitutions influence each other in a dynamic relationship and create a balancing act between anxiety and worry and feelings of being safe and in control.},
  author       = {Petersen, Helle Vendel and Nilbert, Mef and Bernstein, Inge and Carlsson, Christina},
  issn         = {1059-7700},
  keyword      = {Hereditary cancer,Risk perception,Balancing life,Family context,Phenomenological research method},
  language     = {eng},
  number       = {5},
  pages        = {778--784},
  publisher    = {Springer},
  series       = {Journal of Genetic Counseling},
  title        = {Balancing Life with an Increased Risk of Cancer: Lived Experiences in Healthy Individuals with Lynch Syndrome},
  url          = {http://dx.doi.org/10.1007/s10897-013-9682-3},
  volume       = {23},
  year         = {2014},
}