Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Managing Hope and Spiritual Distress : The Centrality of the Doctor-Patient Relationship in Combatting Stem Cell Travel

Humbracht, Michael LU ; Hyun, Insoo and Lundin, Susanne LU orcid (2016) In Routledge Studies in the Sociology of Health and Illness
Abstract
Stem Cell travel refers to patients with a variety of diseases and debilitating disorders who travel abroad to receive unproven stem cell treatments. Current academic research investigating how to combat stem cell travel has yet to offer a complete understanding of the link between patient hope and autonomy, and building or losing trust in medical authorities. To combat stem cell travel, understanding how to manage patients’ potential for hope or spiritual distress is crucial (Hyun, 2013). This article argues that re-conceptualizing the doctor-patient relationship is important to further grasp how to manage patient hope and spiritual distress. This article promotes a notion of the doctor-patient relationship that moves beyond physician... (More)
Stem Cell travel refers to patients with a variety of diseases and debilitating disorders who travel abroad to receive unproven stem cell treatments. Current academic research investigating how to combat stem cell travel has yet to offer a complete understanding of the link between patient hope and autonomy, and building or losing trust in medical authorities. To combat stem cell travel, understanding how to manage patients’ potential for hope or spiritual distress is crucial (Hyun, 2013). This article argues that re-conceptualizing the doctor-patient relationship is important to further grasp how to manage patient hope and spiritual distress. This article promotes a notion of the doctor-patient relationship that moves beyond physician paternalism and patient consumerism; instead the doctor-patient relationship should be viewed as an encounter where patient autonomy is encouraged and guided by physicians through the joint co-creation of treatment. We conclude that sharing is both fuel for stem cell travel and a means to combat it: the first through patients’ bodily sharing of their cells with stem cell purveyors for the latter’s profit and patients’ sharing information and experiences online; the second through doctors and patients sharing the construction of treatment. This manner of framing the issue offers a more realistic and ethical lens through which to view the doctor-patient relationship and combat stem travel than has been previously asserted. In making this argument, the article combines both a bioethical and ethnological approach. (Less)
Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Chapter in Book/Report/Conference proceeding
publication status
published
subject
keywords
stem cell travel, doctor patient relationship, hope, patient autonomy, and co-creation, bioethics, ethnology
host publication
Bodily exchanges, Bioethics and Border Crossing : Perspectives on Giving, Selling and Sharing Bodies - Perspectives on Giving, Selling and Sharing Bodies
series title
Routledge Studies in the Sociology of Health and Illness
editor
Malmkvist, Erik and Zeiler, Kristin
publisher
Routledge
ISBN
978-1-13-885876-3
9781315717760
language
English
LU publication?
yes
id
f651a8e1-0f8e-4cc5-bcd7-9d561a7458b9 (old id 4938998)
date added to LUP
2016-04-04 11:26:30
date last changed
2021-09-21 02:31:42
@inbook{f651a8e1-0f8e-4cc5-bcd7-9d561a7458b9,
  abstract     = {{Stem Cell travel refers to patients with a variety of diseases and debilitating disorders who travel abroad to receive unproven stem cell treatments. Current academic research investigating how to combat stem cell travel has yet to offer a complete understanding of the link between patient hope and autonomy, and building or losing trust in medical authorities. To combat stem cell travel, understanding how to manage patients’ potential for hope or spiritual distress is crucial (Hyun, 2013). This article argues that re-conceptualizing the doctor-patient relationship is important to further grasp how to manage patient hope and spiritual distress. This article promotes a notion of the doctor-patient relationship that moves beyond physician paternalism and patient consumerism; instead the doctor-patient relationship should be viewed as an encounter where patient autonomy is encouraged and guided by physicians through the joint co-creation of treatment. We conclude that sharing is both fuel for stem cell travel and a means to combat it: the first through patients’ bodily sharing of their cells with stem cell purveyors for the latter’s profit and patients’ sharing information and experiences online; the second through doctors and patients sharing the construction of treatment. This manner of framing the issue offers a more realistic and ethical lens through which to view the doctor-patient relationship and combat stem travel than has been previously asserted. In making this argument, the article combines both a bioethical and ethnological approach.}},
  author       = {{Humbracht, Michael and Hyun, Insoo and Lundin, Susanne}},
  booktitle    = {{Bodily exchanges, Bioethics and Border Crossing : Perspectives on Giving, Selling and Sharing Bodies}},
  editor       = {{Malmkvist, Erik and Zeiler, Kristin}},
  isbn         = {{978-1-13-885876-3}},
  keywords     = {{stem cell travel; doctor patient relationship; hope; patient autonomy; and co-creation; bioethics; ethnology}},
  language     = {{eng}},
  month        = {{01}},
  publisher    = {{Routledge}},
  series       = {{Routledge Studies in the Sociology of Health and Illness}},
  title        = {{Managing Hope and Spiritual Distress : The Centrality of the Doctor-Patient Relationship in Combatting Stem Cell Travel}},
  year         = {{2016}},
}