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Family caregivers’ support needs during allo-HSCT—a longitudinal study

Kisch, Annika M. LU ; Bergkvist, Karin ; Alvariza, Anette ; Årestedt, Kristofer and Winterling, Jeanette (2020) In Supportive Care in Cancer
Abstract

Purpose: The study aimed to explore family caregivers’ support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome. Methods: This longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later. Results: The two top support needs prior to allo-HSCT were ‘knowing what to expect in the future’ (79%) and... (More)

Purpose: The study aimed to explore family caregivers’ support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome. Methods: This longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later. Results: The two top support needs prior to allo-HSCT were ‘knowing what to expect in the future’ (79%) and ‘dealing with your own feelings’ (70%). Several support needs were associated with younger age and not being a partner, while higher needs implied worse caregiver outcomes for at least one of the outcomes prior to transplantation. Most support needs remained the same at the last follow-up. Conclusion: The findings that high support needs are often associated with worse caregiver outcomes and most support needs do not diminish over time indicate that more attention should be placed on the situation of family caregivers.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Allo-HSCT, CSNAT, Family caregivers, Haematological malignancies, Support needs
in
Supportive Care in Cancer
publisher
Springer
external identifiers
  • pmid:33125539
  • scopus:85094631127
ISSN
0941-4355
DOI
10.1007/s00520-020-05853-8
language
English
LU publication?
yes
id
501cf02a-ae56-476a-9d76-787190e91705
date added to LUP
2020-11-23 09:36:04
date last changed
2021-01-06 01:07:58
@article{501cf02a-ae56-476a-9d76-787190e91705,
  abstract     = {<p>Purpose: The study aimed to explore family caregivers’ support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome. Methods: This longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later. Results: The two top support needs prior to allo-HSCT were ‘knowing what to expect in the future’ (79%) and ‘dealing with your own feelings’ (70%). Several support needs were associated with younger age and not being a partner, while higher needs implied worse caregiver outcomes for at least one of the outcomes prior to transplantation. Most support needs remained the same at the last follow-up. Conclusion: The findings that high support needs are often associated with worse caregiver outcomes and most support needs do not diminish over time indicate that more attention should be placed on the situation of family caregivers.</p>},
  author       = {Kisch, Annika M. and Bergkvist, Karin and Alvariza, Anette and Årestedt, Kristofer and Winterling, Jeanette},
  issn         = {0941-4355},
  language     = {eng},
  month        = {10},
  publisher    = {Springer},
  series       = {Supportive Care in Cancer},
  title        = {Family caregivers’ support needs during allo-HSCT—a longitudinal study},
  url          = {http://dx.doi.org/10.1007/s00520-020-05853-8},
  doi          = {10.1007/s00520-020-05853-8},
  year         = {2020},
}