Uncovering hidden abilities for participation in research through photo-elicitation interviews : a view on participatory research with people living in residential care facilities
(2023) In Research Involvement and Engagement 9(1).- Abstract
Background: Participatory research has been described to improve the relevance of research findings for the society in terms of quality of healthcare services and other public benefits. Nevertheless, there is limited guidance on how to conduct participatory research, and especially in relation to persons living in residential care facilities. To make the voices of this group heard, we therefore take a stance in the democratic approach to participatory research, and we have applied the theoretical framework Model of Human Occupation (MoHO) on participation to evaluate photo-elicitation interviews as a participatory research method with this group. Methods: A total of 13 persons living in two residential care facilities were involved in... (More)
Background: Participatory research has been described to improve the relevance of research findings for the society in terms of quality of healthcare services and other public benefits. Nevertheless, there is limited guidance on how to conduct participatory research, and especially in relation to persons living in residential care facilities. To make the voices of this group heard, we therefore take a stance in the democratic approach to participatory research, and we have applied the theoretical framework Model of Human Occupation (MoHO) on participation to evaluate photo-elicitation interviews as a participatory research method with this group. Methods: A total of 13 persons living in two residential care facilities were involved in the study and asked to take photographs of their everyday life over one week. They were then invited to an individual interview to narrate the meaning of the photographs and to describe how they experienced the photo-elicitation method. The interviews were analysed in the six steps of theoretically driven reflexive thematic analysis. Results: The findings are described in the theme ‘Uncovering hidden abilities for participation in research’ that describes how photo elicitation interviews facilitated the older persons’ participation in research. This is illustrated by four sub-themes: ‘Bridging the ageing body’, ‘Altering habituation to everyday life’, ‘Empowering storytelling’, and ‘Negotiating the institutional culture’. Conclusions: Our study findings support further application and evaluation of photo-elicitation interviews as a method for participatory research in residential care facilities. The major finding is how photo-elicitation interviews were used to reduce the impact of the institutional culture on the older persons’ participation in research. The method is, however, not without limitations and we encourage researchers to study the dynamic relationship between physical, social, and cultural aspects of residential care facilities in relation to the use of photo-elicitation interviews with the persons living there.
(Less)
- author
- Lood, Qarin ; Hermansen Østby, Roar LU ; Hultqvist, Sara LU ; Edvardsson, David and Dahlin-Ivanoff, Synneve LU
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Care homes, Dementia, Frailty, Methodology, Nursing homes, Participatory research, Photo elicitation, Qualitative methods, Residential aged care
- in
- Research Involvement and Engagement
- volume
- 9
- issue
- 1
- article number
- 9
- publisher
- BioMed Central (BMC)
- external identifiers
-
- pmid:36934278
- scopus:85150886661
- ISSN
- 2056-7529
- DOI
- 10.1186/s40900-023-00422-9
- project
- UserAge: Understanding User Participation in Research on Ageing and Health
- language
- English
- LU publication?
- yes
- id
- 50524fc4-befb-4100-a023-52aa096b0a2f
- date added to LUP
- 2023-05-15 14:03:02
- date last changed
- 2024-06-15 02:54:30
@article{50524fc4-befb-4100-a023-52aa096b0a2f,
abstract = {{<p>Background: Participatory research has been described to improve the relevance of research findings for the society in terms of quality of healthcare services and other public benefits. Nevertheless, there is limited guidance on how to conduct participatory research, and especially in relation to persons living in residential care facilities. To make the voices of this group heard, we therefore take a stance in the democratic approach to participatory research, and we have applied the theoretical framework Model of Human Occupation (MoHO) on participation to evaluate photo-elicitation interviews as a participatory research method with this group. Methods: A total of 13 persons living in two residential care facilities were involved in the study and asked to take photographs of their everyday life over one week. They were then invited to an individual interview to narrate the meaning of the photographs and to describe how they experienced the photo-elicitation method. The interviews were analysed in the six steps of theoretically driven reflexive thematic analysis. Results: The findings are described in the theme ‘Uncovering hidden abilities for participation in research’ that describes how photo elicitation interviews facilitated the older persons’ participation in research. This is illustrated by four sub-themes: ‘Bridging the ageing body’, ‘Altering habituation to everyday life’, ‘Empowering storytelling’, and ‘Negotiating the institutional culture’. Conclusions: Our study findings support further application and evaluation of photo-elicitation interviews as a method for participatory research in residential care facilities. The major finding is how photo-elicitation interviews were used to reduce the impact of the institutional culture on the older persons’ participation in research. The method is, however, not without limitations and we encourage researchers to study the dynamic relationship between physical, social, and cultural aspects of residential care facilities in relation to the use of photo-elicitation interviews with the persons living there.</p>}},
author = {{Lood, Qarin and Hermansen Østby, Roar and Hultqvist, Sara and Edvardsson, David and Dahlin-Ivanoff, Synneve}},
issn = {{2056-7529}},
keywords = {{Care homes; Dementia; Frailty; Methodology; Nursing homes; Participatory research; Photo elicitation; Qualitative methods; Residential aged care}},
language = {{eng}},
number = {{1}},
publisher = {{BioMed Central (BMC)}},
series = {{Research Involvement and Engagement}},
title = {{Uncovering hidden abilities for participation in research through photo-elicitation interviews : a view on participatory research with people living in residential care facilities}},
url = {{http://dx.doi.org/10.1186/s40900-023-00422-9}},
doi = {{10.1186/s40900-023-00422-9}},
volume = {{9}},
year = {{2023}},
}