European Reference Network eUROGEN Guidelines on the Management of Anorectal Malformations, Part II : Treatment
(2024) In European Journal of Pediatric Surgery- Abstract
Introduction Anorectal malformations (ARMs) are rare birth defects affecting the anorectum and oftentimes the genitourinary region. The management of ARM patients is complex and requires highly specialized surgical and medical care. The European Reference Network eUROGEN for rare and complex urogenital conditions aimed to develop comprehensive guidelines for the management of ARM applicable on a European level. Methods The Dutch Quality Standard for ARM served as the basis for the development of guidelines. Literature was searched in Medline, Embase, and Cochrane. The ADAPTE method was utilized to incorporate the newest available evidence. A panel of 15 experts from seven European countries assessed currency, acceptability, and... (More)
Introduction Anorectal malformations (ARMs) are rare birth defects affecting the anorectum and oftentimes the genitourinary region. The management of ARM patients is complex and requires highly specialized surgical and medical care. The European Reference Network eUROGEN for rare and complex urogenital conditions aimed to develop comprehensive guidelines for the management of ARM applicable on a European level. Methods The Dutch Quality Standard for ARM served as the basis for the development of guidelines. Literature was searched in Medline, Embase, and Cochrane. The ADAPTE method was utilized to incorporate the newest available evidence. A panel of 15 experts from seven European countries assessed currency, acceptability, and applicability of recommendations. Recommendations from the Dutch Quality Standard were adapted, adopted, or rejected and recommendations were formed considering the current evidence, expert opinion, and the European context. Results Surgical and medical treatment of ARM, postoperative instructions, toilet training, and management of fecal and urinary incontinence were addressed. Seven new studies were identified. The panel adapted 23 recommendations, adopted 3, and developed 8 de novo. The overall level of newly found evidence was considered low. Conclusion Treatment of ARM patients requires a multidisciplinary team and expertise about anatomical and surgical aspects of the disease, as well as long-term follow-up. This guideline offers recommendations for surgical and medical treatment of ARM and associated complications, according to the best available evidence and applicable on a European level.
(Less)
- author
- Aubert, Ophelia
; Irvine, Willemijn F.E.
; Aminoff, Dalia
; De Blaauw, Ivo
; Cascio, Salvatore
; Cretolle, Célia
; Iacobelli, Barbara Daniela
; Mantzios, Konstantinos
; Midrio, Paola
; Miserez, Marc
; Sarnacki, Sabine
; Schmiedeke, Eberhard
; Schwarzer, Nicole
; Sloots, Cornelius
; Stenström, Pernilla
LU
; Lacher, Martin
and Gosemann, Jan Hendrik
(Less) - organization
- publishing date
- 2024
- type
- Contribution to journal
- publication status
- in press
- subject
- keywords
- ARM, consensus, evidence-based, guidelines, quality standard
- in
- European Journal of Pediatric Surgery
- publisher
- Georg Thieme Verlag
- external identifiers
-
- pmid:39299249
- scopus:85204950943
- ISSN
- 0939-7248
- DOI
- 10.1055/s-0044-1791257
- language
- English
- LU publication?
- yes
- id
- 55647db1-7919-4515-bef6-e2286f8306e1
- date added to LUP
- 2025-01-02 13:31:22
- date last changed
- 2025-07-18 06:19:13
@article{55647db1-7919-4515-bef6-e2286f8306e1,
abstract = {{<p>Introduction Anorectal malformations (ARMs) are rare birth defects affecting the anorectum and oftentimes the genitourinary region. The management of ARM patients is complex and requires highly specialized surgical and medical care. The European Reference Network eUROGEN for rare and complex urogenital conditions aimed to develop comprehensive guidelines for the management of ARM applicable on a European level. Methods The Dutch Quality Standard for ARM served as the basis for the development of guidelines. Literature was searched in Medline, Embase, and Cochrane. The ADAPTE method was utilized to incorporate the newest available evidence. A panel of 15 experts from seven European countries assessed currency, acceptability, and applicability of recommendations. Recommendations from the Dutch Quality Standard were adapted, adopted, or rejected and recommendations were formed considering the current evidence, expert opinion, and the European context. Results Surgical and medical treatment of ARM, postoperative instructions, toilet training, and management of fecal and urinary incontinence were addressed. Seven new studies were identified. The panel adapted 23 recommendations, adopted 3, and developed 8 de novo. The overall level of newly found evidence was considered low. Conclusion Treatment of ARM patients requires a multidisciplinary team and expertise about anatomical and surgical aspects of the disease, as well as long-term follow-up. This guideline offers recommendations for surgical and medical treatment of ARM and associated complications, according to the best available evidence and applicable on a European level.</p>}},
author = {{Aubert, Ophelia and Irvine, Willemijn F.E. and Aminoff, Dalia and De Blaauw, Ivo and Cascio, Salvatore and Cretolle, Célia and Iacobelli, Barbara Daniela and Mantzios, Konstantinos and Midrio, Paola and Miserez, Marc and Sarnacki, Sabine and Schmiedeke, Eberhard and Schwarzer, Nicole and Sloots, Cornelius and Stenström, Pernilla and Lacher, Martin and Gosemann, Jan Hendrik}},
issn = {{0939-7248}},
keywords = {{ARM; consensus; evidence-based; guidelines; quality standard}},
language = {{eng}},
publisher = {{Georg Thieme Verlag}},
series = {{European Journal of Pediatric Surgery}},
title = {{European Reference Network eUROGEN Guidelines on the Management of Anorectal Malformations, Part II : Treatment}},
url = {{http://dx.doi.org/10.1055/s-0044-1791257}},
doi = {{10.1055/s-0044-1791257}},
year = {{2024}},
}