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Long-Term Follow-Up and Survivorship

Tsirou, Aimilia and Hjorth, Lars LU (2016) In Tumors in Adolescents and Young Adults 43. p.27-37
Abstract

Within this chapter, we begin with the invaluable context of the experience of living after cancer as a young person. Then we move to describe the growing body of data indicating the consequences of cancer in patients diagnosed aged as teenagers and young adults (YAs). We identify that, while the variation in definitions used in the literature hamper firm conclusions, specific patterns of substantial morbidity are observed which are distinct from those seen in younger children. When combined with the epidemiology, the overall burden of late effects of adolescents and YA cancer and its treatment are a substantial public health problem. The progress in parts of Europe and the US in bringing together outcomes into medium-sized data sets,... (More)

Within this chapter, we begin with the invaluable context of the experience of living after cancer as a young person. Then we move to describe the growing body of data indicating the consequences of cancer in patients diagnosed aged as teenagers and young adults (YAs). We identify that, while the variation in definitions used in the literature hamper firm conclusions, specific patterns of substantial morbidity are observed which are distinct from those seen in younger children. When combined with the epidemiology, the overall burden of late effects of adolescents and YA cancer and its treatment are a substantial public health problem. The progress in parts of Europe and the US in bringing together outcomes into medium-sized data sets, combined with the gaps in the data and remaining uncertainties, mean that the time is right for international epidemiological ascertainment of these adverse effects. There are potential benefits for commencing prospective clinical as well retrospective epidemiological study designs.

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Please use this url to cite or link to this publication:
author
organization
publishing date
type
Chapter in Book/Report/Conference proceeding
publication status
published
subject
in
Tumors in Adolescents and Young Adults
editor
Stark, DP and Vassal, G
volume
43
pages
27 - 37
publisher
S. Karger AG
external identifiers
  • Scopus:84987597625
ISBN
978-3-318-05911-3
DOI
10.1159/000447040
language
English
LU publication?
yes
id
563b86c6-5b29-45d7-aafd-102f6905ef2f
date added to LUP
2016-10-07 13:21:10
date last changed
2017-01-01 08:36:12
@inbook{563b86c6-5b29-45d7-aafd-102f6905ef2f,
  abstract     = {<p>Within this chapter, we begin with the invaluable context of the experience of living after cancer as a young person. Then we move to describe the growing body of data indicating the consequences of cancer in patients diagnosed aged as teenagers and young adults (YAs). We identify that, while the variation in definitions used in the literature hamper firm conclusions, specific patterns of substantial morbidity are observed which are distinct from those seen in younger children. When combined with the epidemiology, the overall burden of late effects of adolescents and YA cancer and its treatment are a substantial public health problem. The progress in parts of Europe and the US in bringing together outcomes into medium-sized data sets, combined with the gaps in the data and remaining uncertainties, mean that the time is right for international epidemiological ascertainment of these adverse effects. There are potential benefits for commencing prospective clinical as well retrospective epidemiological study designs.</p>},
  author       = {Tsirou, Aimilia and Hjorth, Lars},
  editor       = {Stark, DP and Vassal, G},
  isbn         = {978-3-318-05911-3 },
  language     = {eng},
  pages        = {27--37},
  publisher    = {S. Karger AG},
  series       = {Tumors in Adolescents and Young Adults},
  title        = {Long-Term Follow-Up and Survivorship},
  url          = {http://dx.doi.org/10.1159/000447040},
  volume       = {43},
  year         = {2016},
}