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Rights-Based Reforms of the Governance of Human Heritable Gene Editing and a Call for International Scientific Cooperation

Boggio, Andrea LU orcid and Romano, Cesare P.R. (2025) In Juridical Tribune - Review of Comparative and International Law 15(3). p.427-446
Abstract

The question of the legal permissibility of heritable gene editing techniques is unsettled. The international consensus opposes clinical research and applications involving germline modifications. Building on previous work, this paper examines how international human rights law, particularly human right to science standards, can inform the regulation of this controversial advancement. We present the normative content of the human right to science, apply it to the governance of heritable gene editing, and identify action points that States must take, as a matter of national law and international cooperation, to align the governance of heritable gene editing with human rights standards.

Please use this url to cite or link to this publication:
author
and
publishing date
type
Contribution to journal
publication status
published
subject
keywords
genetic research, heritable gene editing, human right to science, human rights, international scientific cooperation, reproductive technologies
in
Juridical Tribune - Review of Comparative and International Law
volume
15
issue
3
pages
20 pages
publisher
Society of Juridical and Administrative Sciences
external identifiers
  • scopus:105024762642
DOI
10.62768/TBJ/2025/15/3/01
language
English
LU publication?
no
additional info
Publisher Copyright: © 2025, Society of Juridical and Administrative Sciences. All rights reserved.
id
57cb1511-4f8f-4cf8-b377-52ed9f39138a
date added to LUP
2026-01-08 09:53:44
date last changed
2026-01-13 12:32:33
@article{57cb1511-4f8f-4cf8-b377-52ed9f39138a,
  abstract     = {{<p>The question of the legal permissibility of heritable gene editing techniques is unsettled. The international consensus opposes clinical research and applications involving germline modifications. Building on previous work, this paper examines how international human rights law, particularly human right to science standards, can inform the regulation of this controversial advancement. We present the normative content of the human right to science, apply it to the governance of heritable gene editing, and identify action points that States must take, as a matter of national law and international cooperation, to align the governance of heritable gene editing with human rights standards.</p>}},
  author       = {{Boggio, Andrea and Romano, Cesare P.R.}},
  keywords     = {{genetic research; heritable gene editing; human right to science; human rights; international scientific cooperation; reproductive technologies}},
  language     = {{eng}},
  number       = {{3}},
  pages        = {{427--446}},
  publisher    = {{Society of Juridical and Administrative Sciences}},
  series       = {{Juridical Tribune - Review of Comparative and International Law}},
  title        = {{Rights-Based Reforms of the Governance of Human Heritable Gene Editing and a Call for International Scientific Cooperation}},
  url          = {{http://dx.doi.org/10.62768/TBJ/2025/15/3/01}},
  doi          = {{10.62768/TBJ/2025/15/3/01}},
  volume       = {{15}},
  year         = {{2025}},
}