Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Sharing brain imaging data in the Open Science era : how and why?

Giehl, Kathrin ; Mutsaerts, Henk Jan ; Aarts, Kristien ; Barkhof, Frederik ; Caspers, Svenja ; Chetelat, Gaël ; Colin, Marie Elisabeth ; Düzel, Emrah ; Frisoni, Giovanni B. and Ikram, M. Arfan , et al. (2024) In The Lancet Digital Health 6(7). p.526-535
Abstract

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised... (More)

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; ; ; ; ; ; and , et al. (More)
; ; ; ; ; ; ; ; ; ; ; ; ; ; ; ; ; ; ; and (Less)
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
The Lancet Digital Health
volume
6
issue
7
pages
526 - 535
publisher
Elsevier
external identifiers
  • pmid:38906618
  • scopus:85196313259
ISSN
2589-7500
DOI
10.1016/S2589-7500(24)00069-4
language
English
LU publication?
yes
id
5d4cc7a7-4218-444d-b6c6-72900b28b01d
date added to LUP
2024-11-07 11:57:57
date last changed
2025-07-18 22:26:31
@article{5d4cc7a7-4218-444d-b6c6-72900b28b01d,
  abstract     = {{<p>The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.</p>}},
  author       = {{Giehl, Kathrin and Mutsaerts, Henk Jan and Aarts, Kristien and Barkhof, Frederik and Caspers, Svenja and Chetelat, Gaël and Colin, Marie Elisabeth and Düzel, Emrah and Frisoni, Giovanni B. and Ikram, M. Arfan and Jovicich, Jorge and Morbelli, Silvia and Oertel, Wolfgang and Paret, Christian and Perani, Daniela and Ritter, Petra and Segura, Bàrbara and Wisse, Laura E.M. and De Witte, Elke and Cappa, Stefano F. and van Eimeren, Thilo}},
  issn         = {{2589-7500}},
  language     = {{eng}},
  number       = {{7}},
  pages        = {{526--535}},
  publisher    = {{Elsevier}},
  series       = {{The Lancet Digital Health}},
  title        = {{Sharing brain imaging data in the Open Science era : how and why?}},
  url          = {{http://dx.doi.org/10.1016/S2589-7500(24)00069-4}},
  doi          = {{10.1016/S2589-7500(24)00069-4}},
  volume       = {{6}},
  year         = {{2024}},
}