PECARE : Parental Feedback to Improve Congenital Cataract Care in Sweden
(2023) In Journal of Pediatric Ophthalmology and Strabismus 60(4). p.288-294- Abstract
Purpose: To analyze non-directed parental feedback to health care providers responsible for pediatric cataract care in Sweden. Methods: A directed content analysis was used to analyze data consisting of text representing free comments provided by 40 parents. A deductive approach was employed by applying the model of balancing the child’s inability and ability, which includes the categories mastering, collaborating, facilitating, and adapting. Results: Parents lacked piloting and self-management support. They experienced an absence of partnership with the health care team and not being taken seriously. They also felt abandoned by health care, resulting in emotional distress. Parents highlighted the impact of their social network and the... (More)
Purpose: To analyze non-directed parental feedback to health care providers responsible for pediatric cataract care in Sweden. Methods: A directed content analysis was used to analyze data consisting of text representing free comments provided by 40 parents. A deductive approach was employed by applying the model of balancing the child’s inability and ability, which includes the categories mastering, collaborating, facilitating, and adapting. Results: Parents lacked piloting and self-management support. They experienced an absence of partnership with the health care team and not being taken seriously. They also felt abandoned by health care, resulting in emotional distress. Parents highlighted the impact of their social network and the challenges involved in accepting and adapting to the changes in everyday life. Conclusions: This study emphasizes the consequences of the lack of a caring partnership with health care professionals. Because parents act as mediators of care to the child with congenital cataract, persistence on the part of parents and a family-centered approach are essential for the child’s visual development.
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- author
- Gyllén, Jenny ; Haargaard, Birgitte ; Nyström, Alf LU ; Tornqvist, Kristina LU ; Udén, David ; Magnusson, Gunilla and Forsberg, Anna LU
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Journal of Pediatric Ophthalmology and Strabismus
- volume
- 60
- issue
- 4
- pages
- 7 pages
- publisher
- Slack Inc
- external identifiers
-
- pmid:36102270
- scopus:85165726277
- ISSN
- 0191-3913
- DOI
- 10.3928/01913913-20220817-02
- language
- English
- LU publication?
- yes
- id
- 64569bc2-c101-4a83-9351-bd95fd65635a
- date added to LUP
- 2023-11-03 11:50:28
- date last changed
- 2024-04-19 03:33:04
@article{64569bc2-c101-4a83-9351-bd95fd65635a,
abstract = {{<p>Purpose: To analyze non-directed parental feedback to health care providers responsible for pediatric cataract care in Sweden. Methods: A directed content analysis was used to analyze data consisting of text representing free comments provided by 40 parents. A deductive approach was employed by applying the model of balancing the child’s inability and ability, which includes the categories mastering, collaborating, facilitating, and adapting. Results: Parents lacked piloting and self-management support. They experienced an absence of partnership with the health care team and not being taken seriously. They also felt abandoned by health care, resulting in emotional distress. Parents highlighted the impact of their social network and the challenges involved in accepting and adapting to the changes in everyday life. Conclusions: This study emphasizes the consequences of the lack of a caring partnership with health care professionals. Because parents act as mediators of care to the child with congenital cataract, persistence on the part of parents and a family-centered approach are essential for the child’s visual development.</p>}},
author = {{Gyllén, Jenny and Haargaard, Birgitte and Nyström, Alf and Tornqvist, Kristina and Udén, David and Magnusson, Gunilla and Forsberg, Anna}},
issn = {{0191-3913}},
language = {{eng}},
number = {{4}},
pages = {{288--294}},
publisher = {{Slack Inc}},
series = {{Journal of Pediatric Ophthalmology and Strabismus}},
title = {{PECARE : Parental Feedback to Improve Congenital Cataract Care in Sweden}},
url = {{http://dx.doi.org/10.3928/01913913-20220817-02}},
doi = {{10.3928/01913913-20220817-02}},
volume = {{60}},
year = {{2023}},
}